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ME/CFS Severe → somewhat betterIll 5 years before improving or writing

Bedbound with ME/CFS for five years, now slightly better

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill before improving or writing
5 years
Last post
May 2021
In their words
  • Condition: ME/CFSsince I’ve been bed bound for 5 years In context ↗
  • At worst: SevereI’ve been bed bound for 5 years In context ↗
  • Now: Somewhat betterI’m getting slightly better now, though! In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Writing in a CFS forum in May 2021, Petrel 42905 said they had been bed bound for five years, since around 2016, and were getting slightly better now. They hoped to join a D&D game if possible, having wanted to play for a long time but not knowing anyone who plays.

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Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y4 y5 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2016became bed boundI’ve been bed bound for 5 years In context ↗Severe
2021-05-01slightly better after five years bed boundI’m getting slightly better now, though! In context ↗Severe

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