Moderate ME/CFS, bedbound most days as a child, now almost normal with pacing and walks
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- 2 years
- Last post
- Jul 2026
In their words
- Condition: ME/CFS
When i was a kid i was diagnosed with moderate cfs (around10/11)
In context ↗ - Now: Near normal
Around when i was 13 i was pretty much recovered ... i might never be fully back to normal but i have not had symptons for a long time.
In context ↗ - Began after: another virus
i think it came on after a virus although it has been years since it came on
Read from 3 of their posts and comments; links to the one this page draws on
Summary
Diagnosed with moderate CFS around age 10 or 11 after a virus, they left school and were bedbound most days, unable to manage a five-minute walk without post-exertional malaise. They took no medication and over about two years gradually built up stamina with pacing and longer walks; by 13 they were pretty much recovered and exercising daily. They later jogged and rock climbed, still tiring afterwards but no longer crashing.
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What they tried
What they credit
Their words about each treatment
- pacing · Helped a lot
i was not on any medication, i think it was because of pacing
In context ↗ - gradually building up stamina with longer walks and exercise · Helped a lot
over time i built up my stamina and started doing longer walks and exercise
In context ↗ - positive mindset · Helped
doing exercise everyday and having a good mindset really helped
In context ↗
Approaches: Brain retraining · Pacing · Physiotherapy and rehab
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. The dashed part: the story doesn’t say when. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| around age 10/11 | diagnosed with moderate CFS as a kid; left school, bedbound most daysWhen i was a kid i was diagnosed with moderate cfs (around10/11). i think it came on after a virusIn context ↗ | Moderate | |
| over the next 2 years | gradual improvement; built up stamina with pacing and longer walksOver 2 years it gradually got better. i was not on any medication, i think it was because of pacing.In context ↗ | Moderate | Pacing and the energy envelope |
| around age 13 | pretty much recovered, exercising daily, catching up on schoolwork at homeAround when i was 13 i was pretty much recovered, doing exercise everyday and having a good mindset really helped.In context ↗ | Recovered | Pacing and the energy envelope |
| 2026-07-25 (recently) | jogging and rock climbing; tired afterwards but no crashesi might never be fully back to normal but i have not had symptons for a long time. Recently i have started doing jogging and rock climbing and although i get tired afterwards i never have crashes.In context ↗ | Near normal |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
i struggled to leave the house for a 5 minute walk without having pem
In context ↗
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