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ME/CFS Outcome unclearNeeds ongoing treatment

ME/CFS: pacing central, under two hours' sleep without it, lightheaded after minutes

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Sep 2022
In their words
  • Condition: ME/CFSme too! really interesting. when i'm actually properly pacing i get 10-12 hours of sleep In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

Crest 46055 described pacing as central to managing ME/CFS: with proper pacing they slept 10-12 hours and woke feeling somewhat okayish, while without it they slept under two hours. They reported feeling lightheaded after a few minutes of an unnamed activity, and said drinking plenty of water and eating nutrient-dense foods helped them personally.

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What they tried

Also tried

Drinking plenty of water and eating nutrient dense foods· Helpedpacing· Helped
Their words about each treatment
  • Drinking plenty of water and eating nutrient dense foods · HelpedDrinking plenty of water and eating nutrient dense foods helps me personally In context ↗
  • pacing · Helpedwhen i'm actually properly pacing i get 10-12 hours of sleep and feel somewhat okayish upon waking up In context ↗

Symptoms mentioned

Their words about their symptoms
  • Sleep problemswhen i'm actually properly pacing i get 10-12 hours of sleep ... but when i don't? <2, take it or leave it In context ↗
  • POTS & dysautonomiaIt makes me feel lightheaded after a few minutes but that could just be me In context ↗

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Asking aboutCrest 46055’s story

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