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Long COVID Much betterIll 3.5 years before improving or writing

Long COVID with chest, stomach and lung problems, much better after pacing and rest

Condition
Long COVID
At worst
Not stated
Ill before improving or writing
3.5 years
Last post
Jun 2024
In their words
  • Condition: Long COVIDI have long covid since 2021 In context ↗
  • Now: Much betterI started slowly recovering after a week, now 3 months later not there yet, but a lot better. In context ↗
  • Began after: COVIDI have long covid since 2021 In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on

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Summary

Fox 17956 has had long COVID since 2021, with chest pain, stomach and lung problems, and after a 2022 reinfection developed IBS with bloating and food intolerances. Occupational therapy taught pacing and rest with slowly expanding activity, and by early 2024 they could work again and had regained their previous fitness. Later they started slowly recovering after a week; three months later they were better but not fully back.

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What they tried

Also tried

pelvic physical therapist· No changeFODMAP diet· Not saidfood supplements· Not saidbetaine· Not saidprobiotics· Not said
Their words about each treatment
  • occupational therapist · Helped a lotwhat really helped for me was going to an occupational therapist, she helped me dose my daily activities and rest and helped me slowly expand my daily activities over a period of months, and now I am able to work again. In context ↗
  • pacing · HelpedI immediately started doing what helped me the first time (mostly pacing) and I think that really helped. In context ↗
  • FODMAP diet · Not saidI have tried the FODMAP diet and eliminated most fructans and polyols from my diet because I reacted bad to those (since covid), but it seems that literally everything I eat during the day causes problems In context ↗
  • pelvic physical therapist · No changeI also went to the pelvic physical therapist with no results In context ↗
  • food supplements · Not saidtried food supplements, betaine and probiotics In context ↗

Approaches: Pacing

Their path

Very severeSevereModerateMildNear normalRecovered3 y3.2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 years after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2021long COVID began with chest, lung and stomach problemsI have long covid since 2021, mostly chest pains, lung and stomach problems In context ↗Not stated
2022COVID reinfection; bowel problems and food intolerances beganafter getting covid again in 2022 I developed bowel problems and food intolerances In context ↗Not stated
2024-02-15able to work again and back to previous fitness after occupational therapyhelped me dose my daily activities and rest and helped me slowly expand my daily activities over a period of months, and now I am able to work again In context ↗Near normalPacing and the energy envelope
2024-03non-COVID virus; backtracked monthsI experienced that as well. In context ↗Mild
2024-06-09a lot better after the virus setback but not back to previous levelI started slowly recovering after a week, now 3 months later not there yet, but a lot better In context ↗MildPacing and the energy envelope

Symptoms mentioned

Their words about their symptoms
  • Heart symptoms & palpitationsmostly chest pains, lung and stomach problems that are mostly gone now In context ↗
  • Gut problemsevery meal causes more bloating etc. In context ↗
  • Muscle weaknessafter dinner my whole body feels so heavy that I don't even want to walk In context ↗

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