ME/CFS with severe allergies and blood sugar swings, somewhat better on vitamin C and diet
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Oct 2024
In their words
- Condition: ME/CFS
other CFS symptoms may start subsiding
In context ↗ - At worst: Mild
my fatigue is pretty minor but it started with bad allergies and blood sugar swings
In context ↗ - Now: Somewhat better
So not perfect but a long way from where I was.
In context ↗ - Began after: nothing they could name
my fatigue is pretty minor but it started with bad allergies and blood sugar swings
In context ↗
Read from 9 of their posts and comments; links to the 6 this page draws on
Summary
Fatigue was fairly minor but began with severe allergies and blood sugar swings; at worst they slept 10-12 hours a day and sneezed for 30 minutes in the shower. Buffered vitamin C, omega-3, chromium and a high-protein meat-and-potatoes diet helped a lot, and they now need only a one-hour nap with far fewer allergies. They were tapering a low-dose benzodiazepine, with eye strain limiting computer work.
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What they tried
Also tried
Their words about each treatment
- buffered C · Helped
buffered C and omega 3 has helped a lot
In context ↗ - chromium · Helped
along with chromium, and a high protein diet to stabilize blood sugar
In context ↗ - high protein diet · Helped
a high protein diet to stabilize blood sugar
In context ↗ - betaine/trimethylglycine · Helped
I'm mixing it 1:2 with Niacinamide and it WORKS. 350 mg betaine / 750 mg niacinamide.
In context ↗ - niacinamide · Helped
I'm taking 750 mg niacinamide and it works
In context ↗ - Zoloft · Worse
I briefly had POTS after trying Zoloft again, luckily when I stopped the drug that went away.
In context ↗ - benzodiazepine · Helped
It was there before, the benzo helped it.
In context ↗ - beer · Helped
If I have a beer, I can work for around 90 minutes with no issues.
In context ↗
Approaches: Diet · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | worst point: sleeping 10-12 hours a day, long sneezing fits, simple carbs to avoid blood sugar crashesAt my worst, 60% of my calories were simple carbs just to avoid the next blood sugar crash.In context ↗ | Mild |
| — | brief POTS after restarting Zoloft, resolved on stopping itI briefly had POTS after trying Zoloft again, luckily when I stopped the drug that went away.In context ↗ | Not stated |
| 2024-08-01 | allergies and blood sugar swings better on supplements and high-protein dietbuffered C and omega 3 has helped a lot, along with chromium, and a high protein diet to stabilize blood sugar.In context ↗ | Mild |
| 2024-09-03 | peripheral vision and eye strain while tapering a benzodiazepineI'm tapering off a low dose of Benzodiazepine and now have peripheral vision issues.In context ↗ | Mild |
| 2024-10-31 | down to a one-hour nap and far fewer allergies, but not perfectjust a 1 hr nap and hardly any allergies now. So not perfect but a long way from where I was.In context ↗ | Mild |
Adverse events
- Sertraline (Zoloft)“I briefly had POTS after trying Zoloft again, luckily when I stopped the drug that went away.” In context ↗ Other
- Niacinamide (nicotinamide)“For me personally I need to keep that at a minimum or it turns into nervousness.” In context ↗ Mood or psychiatric effects
- Benzodiazepines (unspecified)“I'm tapering off a low dose of Benzodiazepine and now have peripheral vision issues.” In context ↗ Withdrawal problems
Symptoms mentioned
Their words about their symptoms
- Mast cell (MCAS) & allergies
my fatigue is pretty minor but it started with bad allergies and blood sugar swings
In context ↗ - Sleep problems
I've gone from sleeping 10-12 hours a day, and waking up sneezing in the shower for 30 minutes straight
In context ↗ - POTS & dysautonomia
I briefly had POTS after trying Zoloft again, luckily when I stopped the drug that went away.
In context ↗ - Anxiety & low mood
it's a bizarre version of anxiety and high blood pressure
In context ↗ - Vision problems
now have peripheral vision issues
In context ↗ - Headaches & migraine
can't look at a computer for long without pressure building up in their head
In context ↗
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