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ME/CFS Mild → no benefitIll for 21 months

Post-exertional nausea and fatigue with ME/CFS, no improvement

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
21 months
Last post
Mar 2024
In their words
  • Condition: ME/CFSI'm 22F and have struggled on and off with fatigue since age ~17 and found out about CFS a while ago. In context ↗
  • At worst: Mildpost exertional malaise in the form of nausea which would arise the day after I did any kind of cardio In context ↗
  • Now: No benefitLately I've felt very fatigued and burnt out and have been feeling a lot of nausea for the past few days. In context ↗
  • Began after: COVIDIn June 2022 I got covid and long covid after that. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A 22-year-old woman had fatigue on and off from about age 17 and developed long COVID after a COVID-19 infection in June 2022. Her main long-COVID symptom was post-exertional nausea, often the morning after cardio, and she stopped cardio because of it. Nausea remained unpredictable, and by March 2024 she reported being very fatigued and burnt out with several days of nausea.

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Asking aboutValley 83764’s story

What they tried

Their words about each treatment
  • ginger · No changeI use ginger and pepcid and they don't help. In context ↗
  • stopping cardio · Helpedonce I realized it went away when I stopped the cardio, I just stopped entirely for a bit In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
June 2022COVID-19 infection followed by long COVID with post-exertional nauseaIn June 2022 I got covid and long covid after that. In context ↗Mild
after June 2022stopped cardio; nausea went away but random bouts continuedonce I realized it went away when I stopped the cardio, I just stopped entirely for a bit. But even then I'd get random bouts of nausea here and there In context ↗Mild
2023-05-27recurrent nausea; vomiting after two leg exercisesToday it was so bad after only doing two leg exercises that I laid down for a bit on a bench hoping for it to go away and it didn't; I got up and rushed to the bathroom and puked. In context ↗Mild
2024-03-06very fatigued and burnt out with several days of nauseaLately I've felt very fatigued and burnt out and have been feeling a lot of nausea for the past few days. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisepost exertional malaise in the form of nausea which would arise the day after I did any kind of cardio In context ↗
  • Gut problemsI have been dealing with recurrent nausea since I had covid last summer In context ↗

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Asking aboutValley 83764’s story

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