Long COVID with heart palpitations, improved on Clopiwin Plus and Eliquis then relapsed
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 18 months
- Last post
- Sep 2023
In their words
- Condition: Long COVID
I only figured out that I had LC in Sep 22 when I started having bad heart palpitations.
In context ↗ - At worst: Mild
I was at 80-90% 4 months in then back to 50%.
In context ↗ - Now: Relapsed
I felt 90% recovered at one point and for some reason regressed back to around 70%.
In context ↗ - Began after: COVID
I started feeling off since March 22
In context ↗
Read from 10 of their posts and comments; links to the 7 this page draws on
Summary
Swan 58962 started feeling off in March 2022 and was reinfected in July 2022; by September they had bad heart palpitations and realised it was long COVID. Under Dr Laubscher they took Clopiwin Plus and Eliquis for four months; they improved to 80-90% but later relapsed to 50%, and a cold set them back to square one. A low-carb, carnivore-style meat, salt and water diet eased palpitations and tremors and helped them regain weight.
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What they tried
What they credit
Their words about each treatment
- Clopiwin Plus · Helped
It helped dissolve the micro clots and stop the platelet activity but hasn’t resolved the symptoms fully.
In context ↗ - Eliquis · Helped
Did it help? Yes but only short term and it gets you to 80%.
In context ↗ - magnesium supps · Helped
taking magnesium supps helped a lot
In context ↗ - cutting out carbs · Helped
I found my palpitations got much less to none by cutting out carbs
In context ↗ - increasing salt · Helped
increasing salt, substantially
In context ↗ - carnivore diet · Helped
I saw a drastic improvement in my tremors. ... Meat, salt and water only diet helped me pick up the weight I needed.
Approaches: Anticoagulants · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 10 months after onset: the story doesn’t say how ill they were before that. 4 steps say too little to place on the scale and are only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| March 2022 | started feeling offI started feeling off since March 22In context ↗ | Not stated |
| July 2022 | COVID reinfection threw them over the edgegot reinfected in July 22 which threw me over the edgeIn context ↗ | Not stated |
| September 2022 | realised it was long COVID when bad heart palpitations beganI only figured out that I had LC in Sep 22 when I started having bad heart palpitationsIn context ↗ | Not stated |
| early 2023 | improved to 80-90% on anticoagulant/antiplatelet drugsI was at 80-90% 4 months inIn context ↗ | Near normal |
| 2023-02-17 | regressed from 90% back to around 70%I felt 90% recovered at one point and for some reason regressed back to around 70%In context ↗ | Mild |
| 2023-03-04 | dropped back to 50%I was at 80-90% 4 months in then back to 50%. 6 months since diagnosis now.In context ↗ | Mild |
| March 2023 | palpitations and tremors much less after low-carb carnivore dietI found my palpitations got much less to none by cutting out carbs and increasing saltIn context ↗ | Mild |
| 2023-05-01 | flare after a mild coldI feel like I’m back at square one.In context ↗ | Mild |
| 2023-09-07 | meat, salt and water only diet helped regain weightMeat, salt and water only diet helped me pick up the weight I needed.In context ↗ | Not stated |
Adverse events
- Triple anticoagulant therapy“I got worse up to 5 weeks after starting them and then started getting better.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Heart symptoms & palpitations
I only figured out that I had LC in Sep 22 when I started having bad heart palpitations
In context ↗ - Anxiety & low mood
which I’ve never had to such an extent in my life before
In context ↗
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