Miruvor
Sign up
ME/CFS Outcome unclearIll for 2 years

ME/CFS two years on, still working out symptoms; small tasks and self-kindness help

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
2 years
Last post
Aug 2020
In their words
  • Condition: ME/CFSI was diagnosed with CFS two years ago In context ↗
  • At worst: MildI either go for a walk (on a good day) or do small body exercises at home In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

Request to remove this story

Summary

Lake 29011 was diagnosed with CFS two years before writing and was still working out their body and symptoms. They managed by doing minor exercise at a slow pace, walking on good days or doing small body exercises at home, stopping whenever needed, and doing small tasks such as washing, cleaning or reading within their limits. They said being realistic and kind with themselves helped.

Ask Miruvor AI

Asking aboutLake 29011’s story

What they tried

Their words about each treatment
  • minor exercises at a slow pace · HelpedAt the moment I work on doing minor exercises at a slow pace, whatever works for me. ... stop whenever I feel like I need to. In context ↗
  • working on my mind and my expectations of myself · HelpedI spend just as much effort working on my mind and my expectations of myself ... Being realistic and kind with myself has been a massive help. In context ↗
  • medication · Not saidMy GP put me onto a specialist that diagnosed me, gave me medication In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
2018 (two years before writing)diagnosed with CFSI was diagnosed with CFS two years ago In context ↗Not stated
2020-08-28managing minor exercise and daily tasks within limitsAt the moment I work on doing minor exercises at a slow pace, whatever works for me. In context ↗Mild

Ask Miruvor AI

Asking aboutLake 29011’s story

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime