Unable to walk with long COVID, now almost back to normal after B vitamins and pacing
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Jul 2026
In their words
- Condition: Long COVID
I had long covid with tinnitus and hyperacusis
In context ↗ - At worst: Severe
At my worst in 2020: Cant walk, body inflamed, tinnitus, hell
In context ↗ - Now: Near normal
Today: I run 3 times a week, barely notice my tinnitus, rarely get fatigued ... Anxiety, can't shift that one
In context ↗ - Began after: COVID
I had long covid with tinnitus and hyperacusis
In context ↗
Read from 16 of their posts and comments; links to the 12 this page draws on
Summary
Long COVID from 2020 left them unable to walk, with severe tinnitus, hyperacusis and suicidal thoughts. Private blood tests and an OMX test found deficiencies; they took methylated B vitamins and other supplements, a low-FODMAP diet, biofilm busters and antifungals while dealing with SIBO and candida, and paced. Tinnitus settled over about three years, and by late 2025 they ran three times a week and rated themselves 93% recovered, though anxiety lingered and worsened; they had also plateaued and got worse again.
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What they tried
What they credit
Also tried
Their words about each treatment
- B12 and methylated folate / b series vitamins · Helped
Only thing that staves off fatigue
In context ↗ - ivermectin · Helped
Ive been using it for 3 years to great affect
In context ↗ - supplements to address deficiencies · Helped
address deficiencies with supplements
In context ↗ - antifungals · Helped
low fodmap and bio film busters and antifungals
In context ↗ - Calming asmr videos · Helped
What worked: Calming asmr videos
In context ↗ - meditation · Helped
Calming asmr videos, meditation
In context ↗ - vitamin b6 electrolytes · Helped
vitamin b6 electrolytes
In context ↗ - stopping exercise / pacing · Helped
Mehtylated b supplements and stopping excercise
In context ↗ - anti antihistamines · Worse
my covid induced tinnitus means anti antihistamines make it worse
In context ↗ - tin foil around my head · Helped
when i used tin foil around my head it made my tinnitus quieter
In context ↗ - first COVID shot · Helped
I got LC before a vaccine, started to feel a bit better sfter my first shot
In context ↗ - LDN · Helped
Ldn, b supplements, electrolytes snd pacing helped me
In context ↗
Approaches: POTS medication · Antifungals · Diet · Mind-body practices · Other drugs and medicines · Pacing · Radical rest · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2020 | Long COVID at its worst: could not walk, body inflamed, severe tinnitus and hyperacusis, suicidalAt my worst in 2020: Cant walk, body inflamed, tinnitus, hellIn context ↗ | Severe | |
| 2023 (about three years in) | Tinnitus much quieter after testing and addressing deficienciesDoesn't bother me now. Took 3 yearsIn context ↗ | Not stated | |
| 2025-09-09 | Living a full life with walks, a job and a relationshipIve been there and now I live a full life, walks, job, relationship etcIn context ↗ | Near normal | |
| 2025-09-24 | Plateaued, then got worseImproved a lot, plateaued, got worseIn context ↗ | Not stated | |
| 2025-11-28 | Running three times a week, tinnitus barely noticed, 93% health recovery, anxiety lingeringToday: I run 3 times a week, barely notice my tinnitus, rarely get fatiguedIn context ↗ | Near normal | |
| 2026-07-16 | Still helped by LDN, B supplements, electrolytes and pacingLdn, b supplements, electrolytes snd pacing helped meIn context ↗ | Near normal | Low-dose naltrexone |
Adverse events
- H1 antihistamines (unspecified)“my covid induced tinnitus means anti antihistamines make it worse” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Tinnitus
barely notice my tinnitus
In context ↗ - Light & noise sensitivity
I had long covid with tinnitus and hyperacusis
In context ↗ - Anxiety & low mood
Anxiety, can't shift that one and its gotten worse over the last 2 years
In context ↗
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