Relapsing ME/CFS with days in bed, improved then relapsed; amitriptyline helped sleep
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 13 years
- Last post
- Jun 2026
In their words
- Condition: ME/CFS
All sounds very similar to my relapsing remitting version of ME/cfs.
In context ↗ - At worst: Mild
I normally go 2-6 weeks in a mild form until a relapse leaves me in bed for 2-3 days and sometimes longer.
In context ↗ - Now: Relapsed
I also have extended periods of ‘feeling 90% recovered’ before returning to my baseline.
In context ↗ - Began after: another virus
I has a viral trigger 13 years ago. (Probably EBV).
In context ↗
Summary
A Reddit user described relapsing-remitting ME/CFS that began with a viral trigger, probably EBV, 13 years earlier. He spent two to six weeks at a time in a mild form, broken by relapses that left him in bed for two or three days or longer; he also had extended periods of feeling 90% recovered before returning to baseline. Amitriptyline for sleep made a huge difference and NADH helped energy slightly; he was also considering peptides.
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What they tried
Also tried
Their words about each treatment
- Amitriptyline · Helped a lot
Amitriptyline for sleep made a huge difference for me, and can be taken semi-long-term.
In context ↗ - NADH · Helped
NADH has helped with energy and stamina, a small but noticeable amount.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 13 years before June 2026 | viral trigger, probably EBVI has a viral trigger 13 years ago. (Probably EBV).In context ↗ | Not stated |
| — | relapse leaving him in bed for 2-3 days or longerI normally go 2-6 weeks in a mild form until a relapse leaves me in bed for 2-3 days and sometimes longer.In context ↗ | Moderate |
| — | extended periods of feeling 90% recoveredI also have extended periods of ‘feeling 90% recovered’ before returning to my baseline.In context ↗ | Near normal |
| 2026-06 | back at baseline, still having relapsesAm looking into peptides to get me through the relapses atm.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
Amitriptyline for sleep made a huge difference for me
In context ↗