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ME/CFS Somewhat betterNeeds ongoing treatment

Blood sugar and potassium problems in ME/CFS, somewhat better with low-carb meals and rest

Condition
ME/CFS
At worst
Not stated
Ill before improving or writing
Not stated
Last post
Jul 2024
In their words
  • Condition: ME/CFSI was like you once In context ↗
  • Now: Somewhat betterI had to be more patient and give myself months but I eventually improved In context ↗
Read from 4 of their posts and comments; links to the 3 this page draws on

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Summary

Vale 49958 described blood sugar regulation problems despite normal labs, low potassium and an illness they linked to iron use; iron felt essential and vitamin A briefly made them feel well. Low-carb meals and vinegar before meals helped, and they recommended avoiding snacks. They also said pushing too hard made their illness worse, while radical rest and months of patience led to eventual improvement; current function was not stated.

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Asking aboutVale 49958’s story

What they tried

Their words about each treatment
  • iron · HelpedIf I don't take iron I feel like I'm dying. In context ↗
  • vitamin a · Helped a lottaking vitamin a briefly made me feel genuinely well for the first time in years In context ↗
  • low carb diet · Helpedcut back significantly on carbs ... These steps helped me so much. In context ↗
  • vinegar · Helpedhave a tablespoon of vinegar diluted with a glass of water and sip it with a straw before meals ... This helped me so much.
  • radical rest · Helpedradically rest. Do nothing. ... I had to be more patient and give myself months but I eventually improved In context ↗

Approaches: Diet · Radical rest · Supplements

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
—pushed too much and made illness worseI pushed myself too much and made it worse. In context ↗
2024-07-03eventually improved after radical rest and patience; current function not describedI had to be more patient and give myself months but I eventually improved In context ↗Radical rest

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI pushed myself too much and made it worse. In context ↗
  • Anxiety & low moodI was so anxious about the short term of feeling bad In context ↗

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