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ME/CFS Severe → near normalIll 14 months before improving or writing

ME/CFS for about 14 months, barely able to move, now nearly back to normal

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill before improving or writing
14 months
Last post
Apr 2018
In their words
  • Condition: ME/CFSI came down with symptoms of mono in the beggining of 2017 and had cfs(or prolonged mono, they are very simillar though) for the rest of that year + first three months of 2018. In context ↗
  • At worst: SevereIt made my life hell, I could barely move and had very painful swollen lymph nodes and bad cough ... I had to drop out from university and job and move back in with my parents In context ↗
  • Now: Near normalI've started rapidly improving in the march and now all the fatigue and cough is gone and my lymph nodes don't hurt as much, I've started walking a lot and exercising In context ↗
  • Began after: glandular fever or EBVI came down with symptoms of mono in the beggining of 2017
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Pelican 33206 developed mono-like symptoms in early 2017 and had CFS for about 14 months, with painful swollen lymph nodes, a bad cough and such weakness they could barely move, forcing them to drop out of university and work. In January 2018 they attempted suicide. From March 2018 they improved rapidly; by April the fatigue and cough were gone and they were walking, exercising and planning a return to study and work.

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What they tried

Their words about each treatment
  • walking a lot and exercising · Not saidI've started walking a lot and exercising In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
beginning of 2017came down with mono symptoms; CFS followedI came down with symptoms of mono in the beggining of 2017 and had cfs In context ↗Severe
January 2018despair and suicide attempt after a year of illnessI've tried to hang myself in the january of 2018 because I couldn't take it anymore In context ↗Severe
March 2018rapid spontaneous improvement; walking and exercising againI've started rapidly improving in the march and now all the fatigue and cough is gone In context ↗Near normal

Symptoms mentioned

Their words about their symptoms
  • Flu-like symptomsvery painful swollen lymph nodes and bad cough In context ↗
  • Muscle weaknessI could barely move In context ↗
  • Anxiety & low moodI've tried to hang myself in the january of 2018 because I couldn't take it anymore In context ↗

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Asking aboutPelican 33206’s story

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