Largely in bed for two years with long COVID, nearly back to normal on tirzepatide
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4 years
- Last post
- Apr 2026
In their words
- Condition: Long COVID
I was unlucky enough to get Long COVID in mid-2022 after a [very mild infection]
In context ↗ - At worst: Severe
I was severe, went to moderate and then relatively mild.
In context ↗ - Now: Near normal
this stuff has made me improve by 85-90%
In context ↗ - Began after: COVID
I was unlucky enough to get Long COVID in mid-2022
In context ↗
Read from 19 of their posts and comments; links to the 10 this page draws on
Summary
Comet 97797, in New Zealand, got long COVID after a mild infection in mid-2022 and spent roughly two years largely in bed with severe CFS. Gains from rest by 2025 were interrupted by a month-long migraine and a crash on an overseas holiday. In April 2026 tirzepatide (Mounjaro), started for weight loss, improved them 85-90%, back to work almost full time and 5,000-10,000 steps a day, though still run down at times.
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What they tried
What they credit
Also tried
Their words about each treatment
- natural supplements · Worse
I had reactions to some early supplements I tried, but haven't tried anything else new since 2022.
In context ↗ - getting as much rest as I can · Helped
I haven't really done anything to get to this, other than get as much rest as I can.
In context ↗ - Calorie deficits · No change
Calorie deficits, eating a fixed diet, trying to get a few thousands steps a day in and praying for the best, natural supplements etc... but it all fails
In context ↗ - eating a fixed diet · No change
eating a fixed diet ... but it all fails
In context ↗ - trying to get a few thousands steps a day in · Worse
walking up to 5,000 steps over the course of a day. Now this is great, for a day or 2, and then I crash hard.
In context ↗ - colonoscopies · Helped
Have had 2 colonoscopies, both have made me feel amazing for 3-4 days afterwards
In context ↗ - COVID boosters · Helped
both COVID boosters made me feel back to normal for about 48 hours
In context ↗ - flu shot · Not said
I got my first COVID and flu shots again last year (skipped 2022/2023).
In context ↗ - Saxenda (semaglutide) · No change
Was previously on Saxenda for about a year, which did a little for weight loss and nothing for anything else, then it stopped working completely.
In context ↗ - Mounjaro (tirzepatide) · Helped a lot
this stuff has made me improve by 85-90%
In context ↗ - eating very little during the day · Helped
If I don't eat (or eat very little) during the day, I feel even better.
In context ↗
Approaches: GLP-1 drugs · Diet · Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| mid-2022 | Long COVID after a very mild COVID infection; severe CFSI was unlucky enough to get Long COVID in mid-2022In context ↗ | Severe |
| 2022-2024 | about two years of severe CFS, largely lying in bedafter 2 years of lying in bed, I've gained 50kg / 110lbIn context ↗ | Severe |
| 2024 | much less severe; able to get up, work from home and walk up to 5,000 steps, but crashing afterwardsNow a lot less severe. I can get up and do things and work from home.In context ↗ | Mild |
| February 2025 | severe month-long migraine with vertigo sent them back to moderateOne day in February, had a severe migraine out of nowhere that lasted almost a month. Sent me back to moderate.In context ↗ | Moderate |
| May 2025 | crashed on a pre-booked overseas holiday; in bed since arrivingI had a pre-booked holiday, so I went on it (currently still overseas) and am between severe and moderate. Haven't been able to leave bed since arriving last Sunday.In context ↗ | Moderate |
| September 2025 | much better with rest; able to do some exercise and get back to a more regular lifeI haven't really done anything to get to this, other than get as much rest as I can. ... I can do some exercise and I'm slowly getting back to more of a regular life.In context ↗ | Mild |
| early 2026 | mostly housebound again before starting Mounjaro; working 5-6 hours a weekI was primarily housebound, but would go into work for 5-6 hours a week. Generally was stuck around 1,000-2,000 steps a day.In context ↗ | Moderate |
| April 2026 | 85-90% improvement on Mounjaro: out places, back to work almost full time, no crashes in a month, though still run down at timesIt's now been almost 4 weeks and I do 5,000-10,000 steps a day, I've been going out places, back to work almost full time and I haven't had a single crash in that entire month.In context ↗ | Near normal |
Adverse events
- “I had reactions to some early supplements I tried, but haven't tried anything else new since 2022.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Tirzepatide (Monjauro) however has almost completely got rid of PEM and crashes for me however.
In context ↗ - Headaches & migraine
My main LC symptoms were severe fatigue (with crashes that could go on for weeks), nausea and migraines.
In context ↗ - Heart symptoms & palpitations
severe migraines, chest pain and consistent tachycardia
In context ↗ - POTS & dysautonomia
with crazy vertigo and what felt like a neverending crash
In context ↗ - Light & noise sensitivity
I had to sit inside, in a dark room for a month
In context ↗ - Temperature regulation
I'm often run down (runny nose and going hot or cold)
In context ↗
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