ME/CFS
Very severe → recoveredIll 20 years before improving or writing
Bedridden with ME/CFS and in organ failure, now able to work full time
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill before improving or writing
- 20 years
- Last post
- Dec 2019
In their words
- Condition: ME/CFS
I struggled to survive cfs for over 20 years and I can now work full time.
In context ↗ - At worst: Very severe
I was bedridden and in organ failure at my worst.
In context ↗ - Now: Recovered
I struggled to survive cfs for over 20 years and I can now work full time.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
They struggled to survive CFS for over 20 years; at their worst they were bedridden and in organ failure and their parents cared for them. By December 2019, aged 45, they could work full time and were working three jobs while trying to break into their field. They were broke and alone, their parents dead and other family having disowned them over the illness.
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Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | onset of CFSI struggled to survive cfs for over 20 yearsIn context ↗ | Not stated |
| — | bedridden and in organ failure, cared for by parentsI was bedridden and in organ failure at my worst.In context ↗ | Very severe |
| 2019-12-26 | able to work full time, holding three jobsI can now work full time ... I am working 3 jobsIn context ↗ | Recovered |