ME/CFS bad days and low energy, somewhat better with pacing and listening to body
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Jun 2024
In their words
- Condition: ME/CFS
I am recovering from CFS and it's been gradual
In context ↗ - Now: Somewhat better
I am now able (on some days) to be a bit spontaneous and go and see my mum, or go out to coffee with a friend.
In context ↗ - Began after: stress or burnout
Uni caused me to burn out
In context ↗
Read from 6 of their posts and comments; links to the 5 this page draws on
Summary
Heron 62733 said university caused burnout; by 2023 they were working part time and struggling with bad days and managing energy. In January 2024 they reported gradual recovery through pacing and listening to their body, able on some days to see their mum or a friend. They kept to three three-hour shifts a week with rest days between, and in June 2024 said rest days helped but they couldn't afford fewer shifts. They were in the UK.
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What they tried
What they credit
Also tried
Their words about each treatment
- pacing / listening to my body · Helped
I have been really trying to listen to my body and change my life around to include more things that make me happy
In context ↗ - counselling · Helped
I have had counselling in the past and it's really helped but I can't afford it right now.
In context ↗
Approaches: Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | burnout at universityUni caused me to burn outIn context ↗ | Not stated | |
| 2023-08 | working part time, random bad days, exhaustion after a couple of hoursJust am struggling to manage myself on bad days. They come across at random even though I pace myself and be careful with my energy.In context ↗ | Mild | |
| 2024-01-31 | gradual recovery; able on some days to go out and see peopleI am now able (on some days) to be a bit spontaneous and go and see my mum, or go out to coffee with a friend.In context ↗ | Mild | Pacing and the energy envelope |
| 2024-06-07 | still on three three-hour shifts a week, struggling on some work daysI already only work three shifts of three hours and they are on Mondays, Wednesday's and Fridays so I have a rest day between.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
I get really upset as I worry he thinks I'm lazy or leeching off him.
In context ↗
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