Long COVID headaches, head twitching; amitriptyline and rest helped before exercise relapse
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Sep 2024
In their words
- Condition: Long COVID
I had terrible headaches for months after Covid with head twitching.
In context ↗ - At worst: Mild
Getting better now and feel about 70%.
In context ↗ - Now: Relapsed
I was fully recovered but over doing it while exercising did me in. Getting better now and feel about 70%.
In context ↗ - Began after: COVID
I had terrible headaches for months after Covid with head twitching.
In context ↗
Summary
Rain 19061 got long COVID with months of terrible headaches and head twitching, and later recovered fully before overdoing exercise brought a relapse in September 2023. Amitriptyline helped a lot with the headaches, and resting well and eating plain food with lots of vegetables also helped. By February 2024 they felt about 70% better and advised pacing; by September they had noticed a difference from nattokinase.
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What they tried
What they credit
Also tried
Their words about each treatment
- Pacing · Helped
Best tip, don’t over do it. Pace yourself.
In context ↗ - Amitriptyline · Helped
Amitriptyline helped a lot with the headaches.
In context ↗ - Resting well · Helped
Resting well and eating healthy plain food with a lot of vegetables also helped.
In context ↗ - baby aspirin · Not said
Okay, yeah I have to take baby aspirin
In context ↗ - nattokinase · Helped
I think I have noticed a difference taking nattokinase so just wonder for myself.
In context ↗
Approaches: Pacing · Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 3 steps say too little to place on the scale and are only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | long COVID after Covid infectionI had terrible headaches for months after Covid with head twitching.In context ↗ | Not stated | |
| before September 2023 | fully recoveredI was fully recoveredIn context ↗ | Recovered | |
| September 2023 | relapse after overdoing exerciseI’ve just had a relapse in September as well ... over doing it while exercising did me in | Not stated | |
| 2024-02-18 | getting better, about 70%Getting better now and feel about 70%.In context ↗ | Mild | |
| 2024-09-01 | noticed a difference from nattokinaseI think I have noticed a difference taking nattokinaseIn context ↗ | Not stated | Nattokinase |
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
I had terrible headaches for months after Covid with head twitching.
In context ↗ - Post-exertional malaise
over doing it while exercising did me in
In context ↗
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