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ME/CFS Mild → no benefitIll for 8 months

Severe fluctuating ME/CFS fatigue, still ill at eight months; supplements did nothing

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
8 months
Last post
Aug 2026
In their words
  • Condition: ME/CFSSevere fatigue for months and I’m struggling to understand what’s causing it In context ↗
  • At worst: Mildmy energy reserve is so low I come home everyday and immediately find the couch ... I come home during my lunch break too everyday and also lay down on the couch In context ↗
  • Now: No benefitI’ve been taking supplements for the D and B1 for about 4 months and the iron for about and month and nothing has changed In context ↗
  • Began after: nothing they could nameIt started randomly in January
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Ocean 45615 developed severe, fluctuating fatigue suddenly in January 2026 and was still ill eight months later. They kept working but came home each day and lay down on the couch, and had been to the emergency room three times without a diagnosis. A brief let-up in May and June allowed some shopping trips, but their energy reserve stayed very low. Supplements for low vitamin D, B1 and iron changed nothing.

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What they tried

Their words about each treatment
  • supplements for the D · No changeI’ve been taking supplements for the D and B1 for about 4 months and the iron for about and month and nothing has changed In context ↗
  • iron · No changethe iron for about and month and nothing has changed In context ↗
  • matcha · Helpedliterally a few sips of matcha makes me feel like I had a redbull, but I don’t want to live on matcha everyday of my life In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
January 2026severe fluctuating fatigue began suddenlyIt started randomly in January and has been pretty persistent. In context ↗Mild
May to June 2026fatigue let up a little, able to go out shopping againI had a stretch between may and June where It did let up a bit and I was out shopping again ect In context ↗Mild
2026-08-12persistent fatigue, resting on the couch every day after workmy energy reserve is so low I come home everyday and immediately find the couch In context ↗Mild

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