ME/CFS
Mild → no benefit
Bedbound in the dark with ME/CFS migraines; chores still only possible with rests
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- May 2026
In their words
- Condition: ME/CFS
I have CFS and I lift weight 4x a week.
In context ↗ - At worst: Mild
I have CFS and I lift weight 4x a week. However I cannot do ANYTHING after and I wfh independent work only a few hours a day
In context ↗ - Now: No benefit
I am able to go out if I rest in between, same with chores.
In context ↗
Read from 18 of their posts and comments; links to the 13 this page draws on
Summary
A British user with CFS of unstated onset worked part-time from home and lifted weights four times a week, resting an hour before and after and sleeping twelve hours a night. In January 2026 they exceeded their Visible pace points for four days and were bedbound in the dark with a migraine. By May 2026 they could go out and do chores only if they rested in between; they had earlier said socialising and long drives caused crashes.
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What they tried
Also tried
Promethazine· HelpedMagnesium· HelpedCFS specialist sessions (NHS)· HelpedPacing· HelpedVisible· HelpedApple Watch· HelpedPre workout· HelpedEating healthy· HelpedCreatine· No changeWeightlifting 4x a week· WorseEating more food and carbs· Not saidBox breathing· Not said
Their words about each treatment
- Promethazine · Helped
Promethazine. I take 50mg (2 tablets) + magnesium. Super good.
In context ↗ - Magnesium · Helped
I take 50mg (2 tablets) + magnesium. Super good.
In context ↗ - CFS specialist sessions (NHS) · Helped
My CFS specialist sessions on (nhs) have helped me a lot- introducing me to visible, helping me realise diff types of fatigue beyond just physical activity (cognitive, emotional, sensory) management tactics, and pacing
In context ↗ - Pacing · Helped
helping me realise diff types of fatigue beyond just physical activity (cognitive, emotional, sensory) management tactics, and pacing !!
In context ↗ - Visible · Helped
Free heart monitors for pacing. I forked out the £77 for mine and I finally feel like I can’t gaslight myself about my pacing, and I have evidence to show others
In context ↗ - Apple Watch · Helped
I love mine! Super super accurate and helpful :)
In context ↗ - Weightlifting 4x a week · Worse
I have CFS and I lift weight 4x a week. However I cannot do ANYTHING after
In context ↗ - Creatine · No change
I take creatine, no difference to me, I don’t eat red meat but I eat chicken.
In context ↗ - Pre workout · Helped
I also have a pre workout which helps if you are able to have it (I would really struggle without the pre workout
In context ↗ - Eating more food and carbs · Not said
Eat more food. I eat a shit ton and more carbs as well :)
In context ↗ - Eating healthy · Helped
Eating healthy always helps.
In context ↗ - Box breathing · Not said
Box breathing. I like calming audios as well in a dark room.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| January 2026 | living with CFS, working from home a few hours a day and lifting weights four times a weekI have CFS and I lift weight 4x a week. However I cannot do ANYTHING after and I wfh independent work only a few hours a dayIn context ↗ | Mild |
| 2026-01-22 | crashed after exceeding pace points (16-24 daily for four days)I’ve been bed bound in the dark all DAY with a migraine, struggling to go on my phone even.In context ↗ | Severe |
| 2026-05-06 | limited: needs rest between outings and chores; socialising and long drives cause crashesI am able to go out if I rest in between, same with chores.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Socialising is my number one, driving long distances, are things that send me into crash
In context ↗ - Sleep problems
I sleep 12hr a night
In context ↗ - Headaches & migraine
bed bound in the dark all DAY with a migraine
In context ↗ - Light & noise sensitivity
my fatigue is massively triggered by socialising and sensory triggers
In context ↗