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Long COVID Mild → somewhat betterIll 15 months before improving or writing

Near-constant vertigo with long COVID, somewhat better after vestibular rehab

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
15 months
Last post
Jun 2023
In their words
  • Condition: Long COVIDI had this with Covid in March of 2022. In context ↗
  • At worst: Mildoperating at 50% - 60% for awhile In context ↗
  • Now: Somewhat betterI’m still dizzy but now have flare ups instead of 24/7 vertigo. In context ↗
  • Began after: COVIDI had this with Covid in March of 2022. In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on

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Summary

A previously very active person caught COVID in March 2022 and developed long COVID with near-constant vertigo, operating at 50-60% of normal and more sedentary than ever. Vestibular rehab three times a week from July 2022 gradually helped; by June 2023 the 24/7 vertigo had become mostly manageable flare-ups, though still dizzy and trying migraine medication. At the last post a rough flare had brought back early-days feelings.

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What they tried

Also tried

dif migraine meds· Not said
Their words about each treatment
  • vestibular rehab · HelpedVestibular rehab helped a ton for the initial VN after Covid In context ↗
  • dif migraine meds · Not saidnow trying dif migraine meds for flareups In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered6 mo9 mo12 mo15 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 5 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
March 2022COVID-19 infection followed by long COVID with vertigoI had this with Covid in March of 2022. In context ↗Not stated
2022-07-29near-constant vertigo, most sedentary ever, about 50-60% of normalthis is the most sedentary I've ever been ... operating at 50% - 60% for awhile In context ↗Mild
2022-11-02vestibular rehab three times a week since July; vertigo slowly improvingI've been in vestibular rehab 3X a week since July. It gets better but it can take awhile. In context ↗Mild
2023-06-0624/7 vertigo becomes mostly manageable flare-upsI'm still dizzy but now have flare ups instead of 24/7 vertigo. In context ↗Mild
2023-06-06rough vertigo flare-up, feels like the early daysright now I'm in a roughhh one and it's taking me back to the early days In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiaI'm still dizzy but now have flare ups instead of 24/7 vertigo. In context ↗

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