ME/CFS from childhood, too unwell for school, Covid remission then relapse
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 8 years
- Last post
- Mar 2025
In their words
- Condition: ME/CFS
my ME was triggered again by glandular fever
In context ↗ - At worst: Moderate
I was forced to leave school when I was 16
In context ↗ - Now: Relapsed
I’ve been unwell for 8 years now, I had a year of remission but my ME was triggered again by glandular fever
In context ↗
Summary
They fell ill with ME at 11 and were forced to leave school at 16. A remission after severe Covid let them return for about a year, but glandular fever triggered their ME again and they became too unwell to continue. At 19 they were lonely and socially isolated, and at eight years ill they were still seeking antivirals while getting LDN through a private chemist.
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What they tried
Also tried
Their words about each treatment
- LDN · Not said
I currently use them to get my LDN
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 5 years after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| age 11 | fell ill with MEI’ve been ill since I was 11In context ↗ | Not stated |
| age 16 | too unwell to stay in school, forced to leaveI was forced to leave school when I was 16In context ↗ | Moderate |
| after severe Covid | period of remission, returned to school and went out with friendsI had a period of remission after having severe Covid and was able to return for about a yearIn context ↗ | Near normal |
| before April 2024 | glandular fever triggered their ME again and they had to leave schoolmy ME was triggered again by glandular feverIn context ↗ | Moderate |
| 2025-03-09 | still unwell, asking about antiviralsI’ve been unwell for 8 years nowIn context ↗ | Not stated |
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
It’s so depressing
In context ↗