ME/CFS
No benefitIll for 15 years
ME/CFS still ill after over 15 years; exercise and 5-HTP gave no benefit
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 15 years
- Last post
- Dec 2023
In their words
- Condition: ME/CFS
I have CFS and very low serotonin.
In context ↗ - Now: No benefit
Still need to increase my serotonin but not sure how I’ll do that now
In context ↗
Summary
Grove 68958 reported getting nowhere with primary care doctors for over 15 years before working with a functional doctor. That doctor kept pushing exercise, which never worked and always made them feel worse. Prescribed 5-HTP for very low serotonin, they could not tolerate even a quarter of a pill, which left them sedated and severely fatigued, and they stopped it. They were still ill at the last post.
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What they tried
Also tried
Their words about each treatment
- exercise · Worse
she keeps just pushing exercise on me, which never works and always makes me feel worse
In context ↗ - 5-HTP · Worse
it made me sooo tired, like sedated tired, that I stopped taking it. Couldn’t even tolerate 1/4 of one pill without having severe fatigue
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| onset | chronic fatigue beganAfter getting nowhere with my primaries over 15 yearsIn context ↗ |
| 2023-12-10 | still has CFS; 5-HTP not toleratedI have CFS and very low serotonin.In context ↗ |
Adverse events
- Everyday exercise and activity“she keeps just pushing exercise on me, which never works and always makes me feel worse” In context ↗ Made symptoms worse
- 5-HTP“it made me sooo tired, like sedated tired ... Couldn’t even tolerate 1/4 of one pill without having severe fatigue” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
which never works and always makes me feel worse
In context ↗