Long COVID worsened to spinal damage and muscle wasting, with no improvement
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Jul 2025
In their words
- Condition: Long COVID
after that strain of Covid, my body has started falling apart ever since.
In context ↗ - At worst: Severe
my condition is so severe that I require many hours a day of sunbathing just to survive
In context ↗ - Now: No benefit
It’s been nothing but survival day to day.
In context ↗ - Began after: mould or toxic exposure
all of my issues started after being given a antibiotic drug called Ciprofloxacin in 2013
Read from 8 of their posts and comments; links to the 5 this page draws on
Summary
A 30-year-old man dated his illness to 2013, when severe symptoms began soon after Ciprofloxacin for a suspected UTI; he calls it fluoroquinolone toxicity. MRI contrast made his MCAS explode. He never fully recovered from COVID in 2021, worked part-time for a year before quitting, and worsened after further COVID in 2022. By 2025 he had spinal damage and muscle wasting, needed hours of sunbathing daily to survive, and was suicidal.
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What they tried
Their words about each treatment
- Ivermectin · Helped
At 12MG a day, Ivermectin didn’t give me any side effects ... It genuinely helped kick the acute infection down to several days.
In context ↗ - Myers cocktails · Helped
I’ve done Myers cocktails in the past and in my opinion are very minute in benefit.
In context ↗ - Sunbathing · Helped
I require many hours a day of sunbathing just to survive.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 8 years after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2013 | Severe symptoms began soon after a course of CiprofloxacinHad VERY severe symptoms onset, not long after I finished the script of Cipro.In context ↗ | Not stated |
| 2014 | MRI with gadolinium contrast; MCAS explodedThey gave me MRI with contrast which fucked me of worse. ... That is what made my MCAS explode.In context ↗ | Not stated |
| 2021 | Delta variant; thought he would diethat variant fucked me up so bad I thought I was gonna dieIn context ↗ | Severe |
| 2021-2022 | Bounced back enough to work part-time for about a yearI just bounced back enough to go back into my part-time job for about a year before I had to quit.In context ↗ | Mild |
| 2022 | COVID again; body falling apart sinceI then got Covid again in 2022, and after that strain of Covid, my body has started falling apart ever since.In context ↗ | Severe |
| 2025-07-09 | Survival day to day; suicidalIt’s been nothing but survival day to day.In context ↗ | Severe |
Adverse events
- “MRI with contrast which fucked me of worse ... That is what made my MCAS explode.” In context ↗ Autoimmune or inflammatory flare
Symptoms mentioned
Their words about their symptoms
- Muscle weakness
I now have severe spinal damage, muscle wasting and my muscles and connective tissue rip like paper.
In context ↗ - Mast cell (MCAS) & allergies
due to having severe MCAS and a complex connective tissue disease
In context ↗ - Anxiety & low mood
There’s a chambered 9 mm S&W in my top drawer calling my name.
In context ↗