ME/CFS
Severe → somewhat betterNeeds ongoing treatment
Bedbound with ME/CFS, now somewhat better after travelling for help
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
I’d still be completely bed bound of if I didn’t keep looking for help.
In context ↗ - At worst: Severe
I’d still be completely bed bound of if I didn’t keep looking for help.
In context ↗ - Now: Somewhat better
I’m one who has traveled for help and would continue to do so. I’d still be completely bed bound of if I didn’t keep looking for help.
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
A Reddit user with ME/CFS said they would still be completely bed bound had they not kept travelling to look for help. A Lyme disease diagnosis was treated and cleared, but antibiotics left permanent side effects and they chose the herbal route. A visit a few years earlier was, they said, a waste of time and money that offered only pacing and counselling.
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What they tried
Also tried
Their words about each treatment
- antibiotics · Worse
I had this, eventually led to a Lyme disease dx. Treated and it went away.
In context ↗ - herbal route · Not said
I have permanent side effects from antibiotics so chose the herbal route.
In context ↗ - Mayo Clinic · No change
Also went a few years ago and what a waste of time and money.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | completely bed bound before seeking helpI’d still be completely bed bound of if I didn’t keep looking for help.In context ↗ | Severe |
| 2026-01-26 | travelling for medical help; no longer completely bed boundI’m one who has traveled for help and would continue to do so.In context ↗ | Not stated |
Adverse events
- Antibiotics (unspecified)“No, I have permanent side effects from antibiotics so chose the herbal route.” In context ↗ Side effects