ME/CFS
Mild → no benefitIll for 10 years
ME/CFS with fatigue and muscle tension for over a decade, no improvement from supplements
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 10 years
- Last post
- Oct 2025
In their words
- Condition: ME/CFS
I have had chronic fatigue for at least a decade
In context ↗ - At worst: Mild
my fatigue got so bad I could no longer drive safely and would sometimes fall asleep in my car during lunch by accident
In context ↗ - Now: No benefit
I have been tired and tense pretty much constantly at least as far back as middle school
In context ↗ - Began after: nothing they could name
I have been tired and tense pretty much constantly at least as far back as middle school
In context ↗
Summary
Grove 48636 reported chronic fatigue since middle school, at least a decade, with constant tiredness and muscle tension, while blood tests repeatedly showed only minor vitamin deficiencies. Multivitamins, vitamin D, iron and B12 made little difference. Long daily commutes worsened fatigue until they could not drive safely, prompting a switch to part-time work. The Visible app later suggested a possible POTS.
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What they tried
Also tried
Visible app and band· Helpediron· No changeb12· No changemultivitamins· Not saidvitamin D· Not saidmedicine regimen for tics· Not saidwalking on the treadmill· Not said
Their words about each treatment
- iron · No change
I would frequently take things like iron and b12 but never saw much of a difference
In context ↗ - multivitamins · Not said
I have a whole cocktail currently of multivitamins, vitamin D, iron, and b12
In context ↗ - medicine regimen for tics · Not said
I have since found a good medicine regimen to manage my tics
In context ↗ - walking on the treadmill · Not said
my partner for his part has taken upon himself to enforce half an hour of walking on the treadmill everyday already
In context ↗ - Visible app and band · Helped
That has been helpful to me as a hint that I may have POTS
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| middle school | chronic fatigue began in childhoodI have been tired and tense pretty much constantly at least as far back as middle schoolIn context ↗ | Mild |
| past year | fatigue worsened with long daily commutesmy fatigue got so bad I could no longer drive safely and would sometimes fall asleep in my car during lunch by accidentIn context ↗ | Mild |
| about a month ago | dropped training program and switched to part-time workI switched to part time for this reasonIn context ↗ | Mild |
| 2025-10-22 | still fatigued, tracking exertion with Visible appI can see my heart rate go up in real time when I am in a standing positionIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
would sometimes fall asleep in my car during lunch by accident
In context ↗ - POTS & dysautonomia
I may have POTS because I can see my heart rate go up in real time when I am in a standing position
In context ↗