ME/CFS
Outcome unclear
Severe ME/CFS, unable to do usual practices; mental health improved, meditation advised
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Dec 2023
In their words
- Condition: ME/CFS
for me it has been a lifesaver ... When I go into severe mode and can't do other practices
In context ↗ - At worst: Severe
When I go into severe mode and can't do other practices
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
A Reddit user with ME/CFS wrote that severe periods left them unable to do their usual practices and that their Lama advised them to stop fighting fatigue and do Dzogchen meditation. They said energy-raising breathing exercises gave them PEM. Their mental health had improved over time, and they had eventually reached acceptance of trauma, though it was still not easy.
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What they tried
Their words about each treatment
- Dzogchen · Helped
However, for me it has been a lifesaver.
In context ↗ - breathing exercises that are supposed to increase energy · Worse
I've been doing breathing exercises that are supposed to increase energy, but just got PEM.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| 2023-04-22 | Mental health improving; less daily struggleI used to struggle more majorly with mental health. Things are improving over time.In context ↗ | |
| 2023-12-10 | PEM after energy breathing exercisesI've been doing breathing exercises that are supposed to increase energy, but just got PEM.In context ↗ | Meditation, yoga, breathwork |
| 2023-12-15 | Reached acceptance of trauma; still not easyI was traumatized at one point, but have eventually found my way to acceptance. It's still not easy.In context ↗ |
Adverse events
- Meditation, yoga, breathwork“I've been doing breathing exercises that are supposed to increase energy, but just got PEM.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
but just got PEM
In context ↗ - Anxiety & low mood
Eventually the worst most depressing mood can come up
In context ↗