Long COVID, months in bed with thrush, now about 70% after low-histamine diet
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3.5 years
- Last post
- Oct 2025
In their words
- Condition: Long COVID
I got Covid in 2022 and it just about ruined my life.
In context ↗ - At worst: Severe
When I got oral thrush with LC, it spread and had me in bed for several months
In context ↗ - Now: Much better
Getting cured and then adopting a strict non histamine diet has drastically reduced me getting these! I actually haven’t had one in 4 months.
In context ↗ - Began after: COVID
I got Covid in 2022 and it just about ruined my life.
In context ↗
Read from 8 of their posts and comments; links to the 8 this page draws on
Summary
She got COVID in 2022 and spent several months in bed when oral thrush spread during long COVID. A low-histamine diet brought quick relief from her adrenaline dumps, and after two years she was back to about 70% of pre-COVID function. A COVID reinfection in August 2025 while pregnant left her fearing a return to baseline. After an undiagnosed C. diff was treated and she kept strictly to the diet, the episodes stopped for four months.
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What they tried
What they credit
Their words about each treatment
- low histamine diet · Helped
I’m a week on of a low histamine diet and already feeling a lot better just by doing that.
In context ↗ - breathing, yoga · No change
Nothing that I do helps them (breathing, yoga, etc.)
In context ↗ - taking it easy/resting · Helped
except avoiding trigger foods or taking it easy/resting
In context ↗ - PT exercises · Not said
despite working proper PT exercises
In context ↗
Approaches: Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 2 years after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 3 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2022 | Got COVID; long COVID beganI got Covid in 2022 and it just about ruined my life.In context ↗ | Not stated | |
| — | Oral thrush spread and she was in bed for monthsWhen I got oral thrush with LC, it spread and had me in bed for several monthsIn context ↗ | Severe | |
| 2024-03 | A week on a low-histamine diet, no episodes or moderate anxietyI’m a week on of a low histamine diet and already feeling a lot better just by doing that.In context ↗ | Not stated | Low-histamine diet |
| 2024 | Back to a new normal with lifestyle modificationsIt took two full years to get back to a new normal (about 70% pre-Covid), one where I just needed lifestyle modifications.In context ↗ | Mild | Low-histamine diet |
| 2025-08 | COVID reinfection while pregnant, HR 160 at rest, ERI woke up with my HR at 160 laying down for over 20 mins and freaked out, and he drove me to the ER to find we both have Covid.In context ↗ | Not stated | |
| 2025-10 | C. diff cured and strict non-histamine diet; no adrenaline dumps for four monthsGetting cured and then adopting a strict non histamine diet has drastically reduced me getting these! I actually haven’t had one in 4 months.In context ↗ | Mild | Low-histamine diet |
Symptoms mentioned
Their words about their symptoms
- Heart symptoms & palpitations
lost my heart palpitations almost completely
In context ↗ - Mast cell (MCAS) & allergies
It turns out I had undiagnosed c diff that was flaring my MCAS.
In context ↗ - Post-exertional malaise
adrenaline/histamine dumps are usually caused or worsened by overexertion (PEM)
In context ↗ - Temperature regulation
So so cold for maybe 20-30 minutes afterward.
In context ↗ - Vision problems
my vision changes
In context ↗ - Anxiety & low mood
I haven’t had one episode or even moderate anxiety since starting it a week ago
In context ↗
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