ME/CFS with a very small world, somewhat better with less commuting and estrogen
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Apr 2022
In their words
- Condition: ME/CFS
I went into remission during the pandemic because I didn't have to commute and spend 9+ hours a day at school
In context ↗ - At worst: Mild
I went into remission during the pandemic because I didn't have to commute and spend 9+ hours a day at school
In context ↗ - Now: Somewhat better
I'm technically in "remission", but that's because I literally can't do anything but work and school.
In context ↗
Summary
Sandpiper 78469 has ME/CFS and went into remission during the pandemic, which they credit to no longer commuting and spending 9+ hours a day at school. By March 2022 they were technically in remission only because they did nothing but work and school, with symptoms returning if they did more and their world 'very small'. They also have PMDD; progesterone made those symptoms constant, while daily low-dose bioidentical estrogen helped a lot.
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What they tried
Their words about each treatment
- not having to commute and spend 9+ hours a day at school · Helped
I went into remission during the pandemic because I didn't have to commute and spend 9+ hours a day at school
In context ↗ - progesterone · Worse
I have PMDD and taking any form of progesterone basically makes it so my PMDD symptoms are 24/7
In context ↗ - bioidentical estrogen · Helped
I'm currently taking a daily low dose of bioidentical estrogen and it's helped a lot
In context ↗
Approaches: Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | ill with ME/CFS while commuting to and attending schoolI didn't have to commute and spend 9+ hours a day at schoolIn context ↗ | Mild |
| 2022-01-09 | went into remission during the pandemic without commute or schoolI went into remission during the pandemicIn context ↗ | Mild |
| 2022-03-04 | only "in remission" by doing nothing but work and schoolI'm technically in "remission", but that's because I literally can't do anything but work and school.In context ↗ | Mild |
Adverse events
- Progesterone (Prometrium, Utrogestan)“I have PMDD and taking any form of progesterone basically makes it so my PMDD symptoms are 24/7” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
If I do, my symptoms come back.
In context ↗ - Anxiety & low mood
I have PMDD and taking any form of progesterone basically makes it so my PMDD symptoms are 24/7.
In context ↗
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