ME/CFS
Outcome unclearNeeds ongoing treatment
ME/CFS with headaches and nausea, tried estradiol
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Mar 2025
In their words
- Condition: ME/CFS
caffeine is horrible for cfs
In context ↗
Summary
Zephyr 17531, who has CFS, described relying on Diet Coke, sweet coffee drinks and candy 'to get through the day', and took small amounts of caffeine for headaches and nausea. They started estradiol about a year before their January 2025 post, prescribed for ovarian cysts and possible PCOS. They felt infinitely better on it, with more energy and function one week a month, and only minor weight gain as a side effect.
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What they tried
Also tried
estradiol· Helped a lotcaffeine (Diet Coke, Frappuccino, candy)· HelpedCombined birth control (pill, patch or ring)· Not said
Their words about each treatment
- estradiol · Helped a lot
I take estradiol and feel infinitely better with little to no side effects.
In context ↗ - caffeine (Diet Coke, Frappuccino, candy) · Helped
Small amounts of caffeine also help my headaches and nausea.
In context ↗ - Combined birth control (pill, patch or ring) · Not said
It only affected my positively except for a small amount of weight gain.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| — | CFS, cause and date not statedbefore it got really badIn context ↗ | |
| 2024 | started estradiol; period symptoms and energy improvedI take estradiol and feel infinitely better with little to no side effectsIn context ↗ | Estrogen (estradiol) |
| 2025-03-12 | still needs caffeine and sugar to get through the daydiet coke, those little Frappuccino glasses Starbucks sells and candy are the only things that get me through the dayIn context ↗ |
Adverse events
- Combined birth control (pill, patch or ring)“It only affected my positively except for a small amount of weight gain.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
Small amounts of caffeine also help my headaches and nausea
In context ↗