ME/CFS
Outcome unclear
ME/CFS with night waking and allergy-like reactions, planning sleep study, histamine talk
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Sep 2026
In their words
- Condition: ME/CFS
Sleep apnea (can cause sudden wake ups) is apparently really common with both ME and ADHD
In context ↗
Summary
A person with ME/CFS described night waking that had come and gone since childhood and that melatonin never helped, along with random allergy-like reactions. Reintroducing high-histamine foods, they found fermented foods that once eased indigestion, cramping, reflux and dizziness now caused cramping and itchy eyes and skin. They planned a sleep study and, failing that, to discuss histamine activation with their doctor.
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What they tried
Also tried
Their words about each treatment
- fermented foods · Worse
I found a lot of the fermented foods that used to ease some things like indigestion and gut cramping, have been causing more cramping, and itchy eyes and/or skin
In context ↗ - eliminating and reintroducing high histamine foods · Not said
have been eliminating and reintroducing different high histamine foods to see what may or may not be causing different issues
In context ↗ - melatonin · No change
something that has come and gone since I was young and melatonin never helped
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| since I was young | longstanding symptoms came and went since childhoodsomething that has come and gone since I was young and melatonin never helpedIn context ↗ |
| 2026-09-15 | felt worse over the past couple months, fermented foods now causing cramping and itchy eyes/skinall the good food that used to make me feel better is one of the contributors to me feeling worse these past couple monthsIn context ↗ |
| 2026-09-28 | still having random allergy-like reactions and night waking; planning a sleep studySo my personal plan is sleep study and if that comes up with nothing specific, talking to my doc about possible histamine activation and what can be done thereIn context ↗ |
Adverse events
- Probiotics and fermented foods“I found a lot of the fermented foods that used to ease some things like indigestion and gut cramping, have been causing more cramping, and itchy eyes and/or skin” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Mast cell (MCAS) & allergies
I keep having allergy-like reactions at very random times
In context ↗ - Gut problems
I found a lot of the fermented foods that used to ease some things like indigestion and gut cramping, have been causing more cramping
In context ↗ - Sleep problems
something that has come and gone since I was young and melatonin never helped
In context ↗ - POTS & dysautonomia
If I was feeling dizzy and lightheaded I'd have half a jar of pickles and drink the brine.
In context ↗