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Long COVID Moderate → no benefit

Housebound with long COVID and frequent UTIs, coping with distraction and therapy

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Feb 2025
In their words
  • Condition: Long COVIDHappened multiple times since this started. ... it's much harder to accept being housebound
  • At worst: Moderateit's much harder to accept being housebound In context ↗
  • Now: No benefitIt's hit and miss, honestly. The last few months have been pretty tough In context ↗
  • Began after: COVIDr/covidlonghaulers
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A person with long COVID was housebound and found the summer months especially hard to accept; distraction and a monthly therapist helped them cope somewhat. By February 2025 they were also having frequent UTIs, often E. coli, and had been on and off antibiotics repeatedly, which they called a nuisance but easily treatable.

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What they tried

Their words about each treatment
  • therapist · HelpedI have a therapist I speak to once a month also which helps somewhat In context ↗
  • antibiotics · HelpedI've been on and off antibiotics for it non-stop In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—long COVID onset; date not givensince this started In context ↗Not stated
2024-08-19housebound; a particularly tough summerThe last few months have been pretty tough but it usually is during the summer because the weather is nice and it's much harder to accept being housebound. In context ↗Moderate
2025-02-11recurrent UTIs needing repeated antibioticsI've been on and off antibiotics for it non-stop. It's a nuisance as much as anything else but at least it's pretty easily treatable. In context ↗Moderate

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