ME/CFS
Outcome unclear
Very severe ME/CFS; staying up all night felt almost normal from adrenaline and cortisol
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- Not stated
- Last post
- Apr 2021
In their words
- Condition: ME/CFS
my CFS is very severe
In context ↗ - At worst: Very severe
my CFS is very severe
In context ↗
Summary
A Reddit user in r/cfs described their ME/CFS as very severe in April 2021, and said they had a severe case of POTS that walking had kept under control before the ME began. They reported that staying up all night, or getting only a few hours of sleep instead of eight or more, made them feel almost like a normal human, which they attributed to adrenaline and rising cortisol.
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What they tried
Also tried
Their words about each treatment
- walking · Helped
I have a severe case of POTS and before I got ME walking kept it under control.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | developed ME/CFS on top of severe POTSI have a severe case of POTS and before I got ME walking kept it under control.In context ↗ | Not stated |
| 2021-04-24 | described CFS as very severemy CFS is very severeIn context ↗ | Very severe |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I have a severe case of POTS
In context ↗ - Sleep problems
if I only get a feel hours of sleep rather than 8 or more
In context ↗