Severe ME/CFS in childhood, improved to moderate then relapsed
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 8.5 years
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
I started having symptoms of “mild” ME/CFS when I was around 10–11!
In context ↗ - At worst: Severe
I became “severe” pretty suddenly around 12.
In context ↗ - Now: Relapsed
Within a couple of years of no school and resting a lot (so I’m told, I barely remember) I became more what you’d call “moderate”. But it was very slow progress. I’m currently becoming “severe” again (I’m 19 now). I pushed too hard.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Developed mild ME/CFS symptoms around age 10-11 — sore throats and fatigue — and gave up sports and weekend friends; became severe suddenly around 12. A couple of years of no school and resting a lot led to slow progress to moderate. At 19, after pushing too hard, they say they are becoming severe again.
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What they tried
What they credit
Their words about each treatment
- resting a lot · Helped
Within a couple of years of no school and resting a lot (so I’m told, I barely remember) I became more what you’d call “moderate”.
In context ↗
Approaches: Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| age 10–11 | mild ME/CFS symptoms began; gave up sports and weekend friendsI started having symptoms of “mild” ME/CFS when I was around 10–11! Sore throats, fatigue, that sort of thing.In context ↗ | Mild | |
| around age 12 | became severe suddenlyI became “severe” pretty suddenly around 12.In context ↗ | Severe | |
| around age 14 | very slow progress to moderate with no school and a lot of restWithin a couple of years of no school and resting a lot ... I became more what you’d call “moderate”. But it was very slow progress.In context ↗ | Moderate | Radical rest |
| age 19 | pushed too hard, becoming severe againI’m currently becoming “severe” again (I’m 19 now). I pushed too hard.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Flu-like symptoms
Sore throats, fatigue, that sort of thing.
In context ↗ - Post-exertional malaise
I pushed too hard.
In context ↗
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