Long COVID
Moderate → relapsed
Long COVID with POTS and visual snow, improving somewhat then worse after flu vaccine
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Feb 2023
In their words
- Condition: Long COVID
Mild case, then brutal long covid.
In context ↗ - At worst: Moderate
Used to cycle 150-200km a week and now don’t/can’t do much.
In context ↗ - Now: Relapsed
Was improving somewhat and then got the flu vaccine in Dec and made it all worse.
In context ↗ - Began after: COVID
Mild case, then brutal long covid.
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
After a mild COVID infection, this 36-year-old developed long COVID with POTS symptoms, dizziness, vertigo, silent reflux, repeated sinus infections and visual snow, and could no longer cycle 150-200km a week. They were improving somewhat until a December flu vaccine made everything worse and clarithromycin aggravated the POTS. By February 2023 they were still worse than before the vaccine, and stopping PPIs brought the reflux back.
Ask Miruvor AI
What they tried
Their words about each treatment
- Clarithromycin (antibiotics) · Worse
My pots symptoms also got way worse when I was on Clarithromycin ... Antibiotics that fucked my stomach/gut biome up
- PPIs · Helped
I was on PPIs and my throat looked a lot less irritated, and the sinus congestion totally went away
In context ↗ - Flu vaccine · Worse
Was improving somewhat and then got the flu vaccine in Dec and made it all worse
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | COVID infection followed by long COVIDMild case, then brutal long covid.In context ↗ | Moderate |
| before December 2022 | was improving somewhatWas improving somewhatIn context ↗ | Mild |
| December 2022 | flu vaccine made all symptoms worsegot the flu vaccine in Dec and made it all worseIn context ↗ | Moderate |
| January 2023 | clarithromycin for sinus infection; had to lie on the couchI basically had to lie on the couchIn context ↗ | Moderate |
| 2023-02-02 | all long COVID symptoms worse since the flu shotall my LH symptoms are worse sinceIn context ↗ | Moderate |
Adverse events
- Clarithromycin (Biaxin)“Yeah I was on clarithryomycin for a 3rd sinus infection and I basically had to lie on the couch” In context ↗ Made symptoms worse
- Clarithromycin (Biaxin)“I went for one nature walk and my HR was going up to 140 when normally it would stay under 100 and I felt faint a couple times” In context ↗ Heart rhythm problems
- Clarithromycin (Biaxin)“My pots symptoms also got way worse when I was on Clarithromycin (almost fainted on an easy hike” In context ↗ Made symptoms worse
- Clarithromycin (Biaxin)“Antibiotics that fucked my stomach/gut biome up” In context ↗ Gut side effects
- Flu vaccine“Was improving somewhat and then got the flu vaccine in Dec and made it all worse” In context ↗ Made symptoms worse
- Flu vaccine“and has also gotten worse after getting the flu shot” In context ↗ Made symptoms worse
- Flu vaccine“The headache and eye stuff got worse after I got the flu shot and all my LH symptoms are worse since” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodGut problemsHeadaches & migraineHeart symptoms & palpitationsPOTS & dysautonomiaVision problems
Their words about their symptoms
- POTS & dysautonomia
dizziness, vertigo, pots symptoms
In context ↗ - Heart symptoms & palpitations
my HR was going up to 140 when normally it would stay under 100
In context ↗ - Vision problems
mild visual snow both eyes, and flashing spot in one eye
In context ↗ - Headaches & migraine
The headache and eye stuff got worse after I got the flu shot
In context ↗ - Gut problems
the silent reflux has been worse and throat is more irritated
In context ↗ - Anxiety & low mood
happens when I feel more anxious
In context ↗