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ME/CFS Moderate → no benefit

ME/CFS very mild for years, then moderate/severe after hepatitis B vaccine; no improvement

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Sep 2023
In their words
  • Condition: ME/CFSI feel a had a very mild case of ME that became moderate/severe after a hepatitis b vaccine. In context ↗
  • At worst: ModerateBecame moderate/severe a year later while trying to finish uni. In context ↗
  • Now: No benefitI think I had a super mild version for a few years which became mild/moderate after finishing the 3 jabs needed for the hep b vaccine. Became moderate/severe a year later while trying to finish uni. In context ↗
  • Began after: a vaccinationI feel a had a very mild case of ME that became moderate/severe after a hepatitis b vaccine
Read from 4 of their posts and comments; links to the 3 this page draws on

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Summary

Pond 58618 had a very mild case of ME for a few years before a hepatitis B vaccine series, after which it became mild to moderate and then moderate/severe a year later while finishing university. A first Pfizer COVID-19 vaccine in May 2021 caused mild side effects that cleared in two days and hardly any change in ME symptoms. By 2023 they still described the hepatitis B vaccine as having significantly worsened their ME.

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What they tried

Also tried

Their words about each treatment
  • hepatitis b vaccine · Much worseI'm pretty sure a hepatitis b vaccine significantly worsened my ME. In context ↗
  • Pfizer covid-19 vaccine · No changeHardly any change in ME symptoms, was maybe slightly more tired than usual on the second evening. In context ↗
  • paracetamol · Not saidjust some paracetamol a few hours after In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
onsetvery mild ME for a few yearsI think I had a super mild version for a few years In context ↗Mild
—worsened after finishing the hepatitis B vaccine seriesbecame mild/moderate after finishing the 3 jabs needed for the hep b vaccine In context ↗Mild
—dropped to moderate/severe a year later while trying to finish universityBecame moderate/severe a year later while trying to finish uni In context ↗Moderate
2023still significantly worsened by the hepatitis B vaccine, no improvement reportedI'm pretty sure a hepatitis b vaccine significantly worsened my ME In context ↗Moderate

Adverse events

  • “I think I had a super mild version for a few years which became mild/moderate after finishing the 3 jabs needed for the hep b vaccine ... it was only after the 3rd and then it was a very significant drop in my energy levels” Made symptoms worse
  • COVID vaccination as treatment“In terms of normal vaccine side effects I had pain in my arm, mild skin pain, mild headache, slight nausea, painful lymph nodes.” In context ↗ Side effects

Symptoms mentioned

Their words about their symptoms
  • Anxiety & low moodit made me really anxious and nauseous and I haven't really had it since In context ↗

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