Bedbound and housebound with ME/CFS, somewhat better after ashwagandha and pacing
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Oct 2019
In their words
- Condition: ME/CFS
I've had CFS/ME for soon 3 years
In context ↗ - At worst: Severe
It's already bad as hell already by being 50% bedridden, 100% housebound.
In context ↗ - Now: Somewhat better
I've significantly improved since starting this supplement.
In context ↗ - Began after: stress or burnout
Built up over time, stress and too much stimuli.
In context ↗ - Says they never had: Pain & fibromyalgia
i'm grateful for not having pains in the body. Not anywhere
Read from 10 of their posts and comments; links to the 7 this page draws on
Summary
Orchid 73877, a man in Norway, became ill around 2016 with ME/CFS and by mid-2019 was severe, bedbound almost all day for five weeks after minor stress and housebound. Ashwagandha lifted him from bedbound anxiety to functioning somewhat, alongside a clean diet, meditation and pacing, and he had improved a little by June 2019. By October 2019 he was crashing again and had not slept for months.
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What they tried
What they credit
Also tried
Their words about each treatment
- raw vegan, keto and paleo diets · Helped
Cut out dairy, gluten, grains, wheat, sugar, soy 2 years ago, helping slightly with symptoms, but not much
In context ↗ - meditation and mindfulness · Helped
Meditate and be mindfull (This works if done properly) ... I'm trying to meditate and it helps somewhat
- pacing · Helped
Pacing and taking everything slow. Better always to take it slower than you think
In context ↗ - ashwagandha · Helped a lot
It's ashwagandha too. It helped me from being bed bound with anxiety literally strangling me everyday, to being able to function somewhat.
In context ↗ - early nights / fixed sleep schedule · Helped
Go to bed as early as 8, even if you can't sleep just lay until you can. (I'm still waking up every 30 mins though)
In context ↗ - Zoloft, Sertraline, Cipralex · Worse
I've had bad reactions to these anti depressants in the past: ... Zoloft ... Sertraline ... Cipralex
In context ↗
Approaches: Diet · Mind-body practices · Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2.9 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2016 | ME/CFS built up over timeBuilt up over time, stress and too much stimuli.In context ↗ | Not stated |
| 2019-06-07 | crashed after minor stress, in bed almost all day for five weeksI'm having severe CFS and these last 5 weeks i've been laying in the bed almost all day, every day.In context ↗ | Severe |
| 2019-06-25 | began feeling a bit better after almost two months in bedyesterday evening i suddenly began feeling a bit better again, and it has continued so far todayIn context ↗ | Moderate |
| 2019-07-14 | ashwagandha lifted him from bedbound anxiety to functioning somewhatIt helped me from being bed bound with anxiety literally strangling me everyday, to being able to function somewhat.In context ↗ | Moderate |
| 2019-10-04 | in a crash, not sleeping for monthsI'm in a crash right now and it makes it 10x times worse.In context ↗ | Moderate |
| 2019-10-13 | still not sleeping, many other issuesI haven't slept in months and have had many other issues.In context ↗ | Moderate |
Adverse events
- Sertraline (Zoloft), Escitalopram (Lexapro)“I've had bad reactions to these anti depressants in the past: Zoloft ... Sertraline ... Cipralex” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I crashed after some minor stress. Yes, MINOR STRESS.
In context ↗ - Sleep problems
Insomnia (Going crazy by not sleeping)
In context ↗ - Gut problems
IBS (Can't tolerate any kinds of foods.
In context ↗ - Light & noise sensitivity
this frikin room i'm laying in that needs to be dark for me to rest
In context ↗ - Anxiety & low mood
Depression and suicide thoughts
In context ↗ - Temperature regulation
Ice cold feet and hands
In context ↗
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