How it went
Did it last?
- 4 of 20 said the benefit wore off (including the 2 who relapsed).
- 3 of 20 needed to keep up a treatment to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 3 | 15% |
| Near-full | 3 | 15% |
| Substantial | 6 | 30% |
| Partial | 5 | 25% |
| Relapsed | 2 | 10% |
| No benefit | 1 | 5% |
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Moderate | 3 | 0% | |
| Severe | 8 | 12% | |
| Very severe | 8 | 62% |
1 accounts don’t say how ill the person was.
Who published these accounts
Right-hand number: share describing a full or near-full recovery. Pages that sell something, and advocacy sites, tend to publish only the successes.
What people with neuropathy & tingling tried
- TreatmentHow it wentRecoveredFaded
- Selenium, iodine, minerals5 accounts
20% 0%
- B12 injections and methylation4 accounts
25% 0%
- Sarno / TMS / somatic tracking / JournalSpeak3 accounts
67% 0%
Within the accounts on this page. Grey numbers rest on fewer than 10 accounts.
All 20 accounts
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Brain retraining is nervous system regulation
Amy credits the "CFS Recovery" nervous-system-regulation program with turning her case around, alongside daily red-light therapy (about 10 minutes, at least four mornings a week, using a box she bought roughly three years ago) and work with a therapist who…
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My gigantic story going back to 1996, treatment plan included
Five days into a thiamine/magnesium/potassium-focused protocol after nearly three decades of worsening illness, TexRob reports restored temperature regulation, normalized sweating, resumed GI and urinary function, and reduced brain fog/neuropathic pain,…
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Michelle
Michelle saw more than ten specialists and tried extensive medical treatment: beta blockers, the migraine drug Ubrelvy, meclizine for dizziness, two rounds of prednisone, B12 shots for neuropathy, and Paxlovid taken months after her initial infection, plus…
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Amy Engkjer
She combined a concussion protocol (limiting phone use and conversation), neurofeedback, a five-hour NLP (Neuro Linguistic Programming) session, EMDR, physical therapy, shiatsu, daily cold showers, an anti-inflammatory diet, meditation, and journaling,…
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I realized there was nothing spectacularly wrong with my body. My fear of never getting better had kept me from getting better!
Esther's breakthrough came after hearing a podcast featuring psychotherapist Nicole Sachs and "Lieke from Amsterdam," which led her to journal about her emotions and read books by Dr. Sarno and Nicole Sachs, following roughly eight months of illness that…
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No PEM after weeks on Valacyclovir
Restarted valacyclovir at 1g three times daily after roughly a year spent bedridden 20-22 hours a day, following a 2009 viral onset, a 2011-2016 quasi-remission, and a hard relapse after a second viral infection in 2016. Just over a month in, reports…
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List of ME/CFS Recovery and Improvement Stories (page 8 discussion)
2Cor.12:19 has used 1mg LDN with turmeric for 6 years for significant pain relief from ME/CFS, osteoarthritis and axonal polyneuropathy, rarely needing additional pain medication - notable enough that a treating neurologist was surprised at the lack of…
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Surprising amazing response to cinnarizine (vasodilator)
Cinnarizine at half a 25mg tablet twice daily - 12.5mg in total, well under the usual 75mg - produced a response within hours of the first dose, with tingling in the hands, feet and fingers and a sense of life coming back into the body. Pressure in the head…
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Jennifer Brea's Amazing ME/CFS Recovering Story: the Spinal Series Pt II
Jennifer Brea, the Unrest filmmaker, had been wheelchair-dependent for nearly all of her eight-year illness, at her lowest with breathing difficulties, flaccid limbs, numbness and speech problems. About six months before this post she underwent spinal…
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I had to move in with my mother to get care, but now I define myself as recovered
Anne Mari did a three-day Lightning Process course in September 2018, which she says gave her "more stable energy and an inner confidence of recovery." She had been ill for about a year after contracting Q-fever in November 2017, diagnosed in April 2018 with…
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Hyperalgesia and pain resolved with INOSINE
A combination of inosine and caffeine with calcium glutarate, several minerals/B6 and later ribose produced "complete reversion" of longstanding neuropathic pain and pain-free mornings, plus better tolerance of B-vitamin injections. She is explicit it is not…
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Pain gone with AMBROXOL
Ambroxol 15mg three times daily made 35-year-old neuropathic leg/hip pain "vanish" within two hours of the first dose, which she called "a kind of miracle" while immediately doubting it -- "hard to believe... let's see if the effect will keep going on the…
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I had Rituxan and I feel amazing
Ill 33 years with feeding-tube dependence, orthostatic blood pressure of 58/42, bedbound autonomic dysfunction and photophobia, she received 4 weekly Rituximab infusions (375mg/m2) with methotrexate and steroid premedication at Stanford, finishing mid-March…
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Rambler's Mold Avoidance Experiments
After needing stimulants just to leave his moldy San Francisco house for four years, strict mold avoidance for about two weeks brought sleeping through the night, less brain fog, clearer vision, more morning energy and almost no tingling in his hands and…
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Ten Years of healing: No more congestive heart failure, FMS, CFS and minus 100 pounds
Twenty years into disabling CFS, fibromyalgia and congestive heart failure requiring daily diuretics for 85lbs of water retention, he began an injectable methylcobalamin/adenosylcobalamin/methylfolate/L-carnitine protocol (the "Deadlock Quartet," later…
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Healing results---good news
After more than a year of severe illness (internal tremors, burning/throbbing hands, nerve pain), she followed Freddd's protocol for 5 years total — sublingual methylcobalamin for about 3 years, then near-daily injections for 2 more. She reports "absolutely…
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Skyline's Journal: Progress & Experiments
About a week into restarting a full methylation protocol (high-dose methylfolate, dual-form B12, folinic acid and potassium alongside L-carnitine and B-vitamins), this poster's self-rated daily tracking shows energy reaching "10," headaches nearly resolved,…
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Update from Michael Snyderman, MD
Dr. Snyderman, who developed CFS about a decade after an oral polio vaccine and later CLL, started AZT plus raltegravir 571 days after his CLL diagnosis and improved for about 9.4 months, with falling cytokine markers and better fatigue, concentration and…
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3 day fasting to reset immune system
sb4 went 7 days completely dry, no food or water, then continued 23 more days taking only one or two glasses of water a day, 30 days in total. They felt "horribly sick for the majority of the fast," with nausea, pins and needles, heart palpitations and…
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Fasting - full water only variety - has anyone here tried it?
Eddy M, who has an atypical ME/CFS with debilitating muscular fatigue, neuropathic symptoms and PEM, tried a planned 7-day water fast but abandoned a second attempt after only 8-10 hours. Rather than helping, the fast made things worse: fatigue gradually…