How it went
Did it last?
- No one said the benefit wore off.
- 2 of 6 needed to keep doing it to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 1 | 17% |
| Near-full | 1 | 17% |
| Substantial | 1 | 17% |
| Partial | 1 | 17% |
| Relapsed | 0 | 0% |
| No benefit | 2 | 33% |
Only 6 accounts. Treat these percentages as anecdotes, not rates.
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Severe | 2 | 50% | |
| Very severe | 1 | 0% |
3 accounts don’t say how ill the person was.
Who published these accounts
Right-hand number: share describing a full or near-full recovery. Pages that sell something, and advocacy sites, tend to publish only the successes.
How often it comes up
Posts that mention Bifidobacterium infantis and targeted probiotic strains, per 1,000 posts each year. Hover a point for the count.
Show as a table
| Year | Posts mentioning it | All posts | Per 1,000 |
|---|---|---|---|
| 2009 | 0 | 184 | 0.0 |
| 2010 | 0 | 682 | 0.0 |
| 2011 | 0 | 704 | 0.0 |
| 2012 | 0 | 1,491 | 0.0 |
| 2013 | 1 | 1,708 | 0.6 |
| 2014 | 11 | 2,352 | 4.7 |
| 2015 | 3 | 2,158 | 1.4 |
| 2016 | 2 | 1,431 | 1.4 |
| 2017 | 3 | 3,110 | 1.0 |
| 2018 | 0 | 2,201 | 0.0 |
| 2019 | 3 | 1,075 | 2.8 |
| 2020 | 0 | 2,581 | 0.0 |
| 2021 | 0 | 1,867 | 0.0 |
| 2022 | 1 | 1,166 | 0.9 |
| 2023 | 0 | 1,000 | 0.0 |
| 2024 | 0 | 1,237 | 0.0 |
| 2025 | 0 | 1,019 | 0.0 |
| 2026 (so far) | 0 | 840 | 0.0 |
Posts in the forum threads we archived, 26,806 in all, counted per year. A mention means the post names the treatment, not that the writer took it. These threads all contain a recovery story, so they show what those communities discussed, not everyone with ME/CFS or long COVID. All trends
All 6 accounts
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The Remission Biome Project: Two ME/CFS Patients Begin a Gut Reset Effort to Regain Their Health
Bifidobacteria: a multi-strain probiotic blend of Bifidobacterium breve, B. bifidum, B. infantis and B. longum together with Lactobacillus rhamnosus and Saccharomyces boulardii, given as one part of a wider protocol that also included mold avoidance, B…
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Treatment with KDM Miraculous So Far, Need Help with Dysbiosis Though
After roughly 30 years of suspected chronic Lyme/ME-CFS that left him "near totally bed-ridden and almost not being able to speak," he began a multi-part KDM protocol in 2018 including subcutaneous Gammanorm, alternating Normix/Mutaflor, B12 injections, an…
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Has anyone seen improvement on Clostridium Butyricum ?
Took Clostridium butyricum, 2-3 tablets a day for about a month, mainly for restless legs syndrome relief. Her RLS goes away while she keeps taking it but returns if she stops, alongside mild diarrhea and worse sleep as side effects, so the benefit is real…
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Anyone else here have MCS too?
Takes Miyarisan, a Clostridium butyricum probiotic, on an ongoing basis for severe MCS (perfumes, cigarette smoke, kerosene, air fresheners) alongside ME/CFS, POTS, IBS, brain fog and PEM. Says it almost completely stopped her MCS reactions; she still avoids…
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Symbioflor-2: Another E.Coli Probiotic
Symbioflor-2, an E. coli probiotic, was taken over three weeks with the dose gradually increased to 21 drops a day. Illness duration and severity before starting are not stated, though prior stool testing had shown an absence of bifidobacteria, lactobacillus…
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making a PRObiotic chart -- Bifido spp only!!
Bifidobacterium infantis 35624: taken as the Align probiotic brand, starting at one capsule daily for two weeks and then increasing to two capsules daily. She has ME/CFS with symptoms including joint pain, tinnitus and brain fog. The first two weeks produced…