Everyone · 14 people
How it went for everyone who tried it
Helped means they said it helped with what they took it for, which may be one symptom and not the illness.
Shares are out of the 13 people who said how it went. 1 more tried it without saying how it went.
Show as a table
| How it went | People | Share |
|---|---|---|
| Helped a lot | 4 | 31% |
| Helped | 5 | 38% |
| No change | 2 | 16% |
| Worse | 2 | 15% |
| Much worse | 0 | 0% |
Shares are rounded to add up to 100, so two equal counts can show a point apart.
Did it last, for everyone it helped?
- It wore off for 2 of the 9 people it helped, all of whom credit it for their improvement.
Read from what people wrote, and the more someone wrote, the more likely they are to mention it. Some people stop posting before saying, so the real number may be higher.
Everyone · 6 people, few people
Among the 6 who credit it with their improvement, here’s how they are now
Credit it means they say it’s one reason they got better: 3 say it helped them most; 3 say it was one of several things that helped.
Where each person was at the end of their story, or in their latest post that says how they are, compared with their worst point.
Show as a table
| Outcome described | People | Share |
|---|---|---|
| Recovered | 0 | 0% |
| Near normal | 1 | 17% |
| Much better | 0 | 0% |
| Somewhat better | 1 | 16% |
| Relapsed | 4 | 67% |
Did it last?
- 2 of the 6 who credit it said its benefit wore off; both are among the 4 who relapsed.
- 3 of the 6 who credit it say they still need to keep doing something (not always this) to stay well.
Long COVID · 11 people
How it went for everyone who tried it
Helped means they said it helped with what they took it for, which may be one symptom and not the illness.
Shares are out of the 10 people who said how it went. 1 more tried it without saying how it went.
Show as a table
| How it went | People | Share |
|---|---|---|
| Helped a lot | 4 | 40% |
| Helped | 4 | 40% |
| No change | 1 | 10% |
| Worse | 1 | 10% |
| Much worse | 0 | 0% |
Did it last, for everyone it helped?
- It wore off for 2 of the 8 people it helped, all of whom credit it for their improvement.
Read from what people wrote, and the more someone wrote, the more likely they are to mention it. Some people stop posting before saying, so the real number may be higher.
Long COVID · 6 people, few people
Among the 6 who credit it with their improvement, here’s how they are now
Credit it means they say it’s one reason they got better: 3 say it helped them most; 3 say it was one of several things that helped.
Where each person was at the end of their story, or in their latest post that says how they are, compared with their worst point.
Show as a table
| Outcome described | People | Share |
|---|---|---|
| Recovered | 0 | 0% |
| Near normal | 1 | 17% |
| Much better | 0 | 0% |
| Somewhat better | 1 | 16% |
| Relapsed | 4 | 67% |
Shares are rounded to add up to 100, so two equal counts can show a point apart.
Did it last?
- 2 of the 6 who credit it said its benefit wore off; both are among the 4 who relapsed.
- 3 of the 6 who credit it say they still need to keep doing something (not always this) to stay well.
ME/CFS · 3 people, few people
How it went for everyone who tried it
Helped means they said it helped with what they took it for, which may be one symptom and not the illness.
Shares are out of the 3 people who said how it went.
Show as a table
| How it went | People | Share |
|---|---|---|
| Helped a lot | 0 | 0% |
| Helped | 1 | 34% |
| No change | 1 | 33% |
| Worse | 1 | 33% |
| Much worse | 0 | 0% |
Shares are rounded to add up to 100, so two equal counts can show a point apart.
ME/CFS · no one
No one with ME/CFS credits it with their improvement
Credit it means they say it’s one reason they got better.
Everyone · not split by condition
By how ill people were
Only the 6 who credit it, so people it didn’t help or made worse aren’t here. How they are now is their outcome overall, not the effect of this one treatment.
| Severity at worst | How they are now | n | Recovered or near normal |
|---|---|---|---|
| Mild | 1 | 0%, few people | |
| Severe | 3 | 0%, few people | |
| Not stated | 2 | 50%, few people |
Show as a table
| At worst | Outcome | People | Share |
|---|---|---|---|
| Mild | Relapsed | 1 of 1 | 100% |
| Severe | Somewhat better | 1 of 3 | 33% |
| Severe | Relapsed | 2 of 3 | 67% |
| Not stated | Near normal | 1 of 2 | 50% |
| Not stated | Relapsed | 1 of 2 | 50% |
Everyone · not split by condition
Adverse events
What people said went wrong, in their own words.
3 of 14
people who wrote about taking it described a problem they tied to it
By kind
Unpleasant effects people tied to it, the most serious first.
Made symptoms worse · 2Other · 1 Show all 2Hide
Made symptoms worse
2 people“Having bradycardia and tachycardia my sinus node was malfunctioning. Of course this crashed me. Home bound for 2 months.”
— Prairie 48012 “I had to replace my pacemaker and since that surgery I haven’t been great and I am in bed a lot more.”
— Pebble 99607 Other
1 person“I had a pacemaker placed in January with perforation of the atria and now chronic pericarditis and started Arcylist”
— Plover 36116
Only what people tied to this treatment, in their own words, grouped by kind.
Everyone · 14 people
All 14 people who tried it
-
Passing out with long COVID and heart pauses; pacemaker helped, then relapse
After getting COVID in 2021, they began passing out unexpectedly, and monitoring showed their heart was stopping for 5 to 10 seconds at a time. A pacemaker stabilized things for a while, but lightheadedness and waves of heat followed by chills never went…
-
Long COVID eye nerve pain and brain fog, now close to normal; credits DNRS
Lake 92158 became ill at 21 after a traumatic brain injury, with POTS, migraines, heart problems and CFS-like symptoms, and was housebound for a year. They credit DNRS, started after that year, for much recovery: by 2020 they were about 80% recovered, hiking…
-
Long COVID with POTS, in bed a lot; improved with a pacemaker, then relapsed
A 21-year-old man developed long COVID after a January 2023 infection with POTS, bradycardia in the 30s-40s, palpitations and brain fog; he spent a lot of time in bed and lost a college semester. A pacemaker helped about 50% and ivabradine with metoprolol…
-
Long COVID with heart failure and severe tachycardia, somewhat better with pacemaker
Crest 86705 became ill with long COVID after a June 2022 infection that caused bilateral pulmonary embolisms, heart failure and severe tachycardia. A pacemaker, beta blocker, calcium channel blocker, ivabradine and magnesium improved their heart control, and…
-
Bedbound with long COVID, improved then bedridden again after a vaccine shot
Swan 40224 had long COVID and was bed bound for about 28 months, with neck and back pain, palpitations, vision problems and nerve damage. Vitamin C and a multivitamin gave a 50-60% improvement; a pacemaker, Zyrtec with famotidine, ivermectin and a seven-day…
-
Repeated passing out from POTS, fine on pacemaker until long COVID brought it back
The user developed POTS after mono about 15 years earlier, passing out repeatedly with heart rates of 30 or 200. Cardiac ablations failed; an experimental sympathectomy caused more problems, including no sweating on half the body and a partly paralysed…
-
Long COVID pain, breathlessness and crashes, some improvement with a patch and medication
A long-COVID Reddit user described years of pain, breathlessness, fainting, gut problems and post-exertional crashes, and could not work full time. A patch eased afternoon fatigue and thinking, and 2.5 mg of a medication left them much better apart from…
-
ME/CFS fatigue, pacemaker didn't really help, wrist device inaccurate
The person has ME/CFS and had a pacemaker implanted hoping it would lessen their fatigue, but says it did not really help; they still have underlying heart issues and find it hard to tell PEM from their heart playing up. They also use a Visible wrist device,…
-
Long COVID with days unable to leave the couch, improved then relapsed into PEM crashes
Long COVID began three months after a COVID-19 infection, with restroom trips spiking heart rate and days unable to leave the couch. They use pacing, L-arginine and supplements; a four-month stretch of 7-mile walks and 14,000 steps a day was followed by a…
-
With ME/CFS, low-dose naltrexone left them a little better, doing two things most days
This Reddit user, ill with ME/CFS for an unstated time, took low-dose naltrexone for several years, raising the dose to 6 mg, and called it very helpful: they could go out for lunch with friends, though nothing else that day. Later they reported feeling a…
-
Long COVID with heart block, hearing loss and neuropathy, no benefit from prednisone
A 30-year-old man fell ill in September 2024 with a probable COVID infection, then developed third-degree heart block needing a pacemaker, POTS-like heart-rate swings, sudden right-ear hearing loss and spreading pins and needles and numbness. Prednisone…
-
Four years of long COVID breathlessness and brain fog, now back to normal after Singulair
A 21-year-old man had COVID-19 in January 2021, at age 16, and then lived with persistent shortness of breath and brain fog for four years. Supplements and a pacemaker did not resolve his symptoms. In 2025, two days after starting Singulair (montelukast), he…
-
Bedridden before ME/CFS, improved on SPM-Active, then relapsed to mostly housebound
Pebble 99607 was bedridden with Lyme disease for months before it became ME/CFS, and has been ill for over a decade. IV antibiotics, weekly deep-tissue massage and the supplement SPM-Active each brought gains, SPM-Active letting her walk a mile daily without…
-
Long COVID chest pain and months laid up, somewhat better with colchicine and prednisone
A Reddit user who caught COVID in early 2020 developed myopericarditis, costochondritis, dysautonomia and chronic breathlessness, with chest pain at 9-10/10 and months spent laid up. Colchicine and prednisone eased the heart and lung symptoms, and physical…
The first 6 credit Pacemaker for their improvement; the other 8 tried it without crediting it.
Long COVID · 11 people
All 11 people who tried it
-
Passing out with long COVID and heart pauses; pacemaker helped, then relapse
After getting COVID in 2021, they began passing out unexpectedly, and monitoring showed their heart was stopping for 5 to 10 seconds at a time. A pacemaker stabilized things for a while, but lightheadedness and waves of heat followed by chills never went…
-
Long COVID eye nerve pain and brain fog, now close to normal; credits DNRS
Lake 92158 became ill at 21 after a traumatic brain injury, with POTS, migraines, heart problems and CFS-like symptoms, and was housebound for a year. They credit DNRS, started after that year, for much recovery: by 2020 they were about 80% recovered, hiking…
-
Long COVID with POTS, in bed a lot; improved with a pacemaker, then relapsed
A 21-year-old man developed long COVID after a January 2023 infection with POTS, bradycardia in the 30s-40s, palpitations and brain fog; he spent a lot of time in bed and lost a college semester. A pacemaker helped about 50% and ivabradine with metoprolol…
-
Long COVID with heart failure and severe tachycardia, somewhat better with pacemaker
Crest 86705 became ill with long COVID after a June 2022 infection that caused bilateral pulmonary embolisms, heart failure and severe tachycardia. A pacemaker, beta blocker, calcium channel blocker, ivabradine and magnesium improved their heart control, and…
-
Bedbound with long COVID, improved then bedridden again after a vaccine shot
Swan 40224 had long COVID and was bed bound for about 28 months, with neck and back pain, palpitations, vision problems and nerve damage. Vitamin C and a multivitamin gave a 50-60% improvement; a pacemaker, Zyrtec with famotidine, ivermectin and a seven-day…
-
Repeated passing out from POTS, fine on pacemaker until long COVID brought it back
The user developed POTS after mono about 15 years earlier, passing out repeatedly with heart rates of 30 or 200. Cardiac ablations failed; an experimental sympathectomy caused more problems, including no sweating on half the body and a partly paralysed…
-
Long COVID pain, breathlessness and crashes, some improvement with a patch and medication
A long-COVID Reddit user described years of pain, breathlessness, fainting, gut problems and post-exertional crashes, and could not work full time. A patch eased afternoon fatigue and thinking, and 2.5 mg of a medication left them much better apart from…
-
Long COVID with days unable to leave the couch, improved then relapsed into PEM crashes
Long COVID began three months after a COVID-19 infection, with restroom trips spiking heart rate and days unable to leave the couch. They use pacing, L-arginine and supplements; a four-month stretch of 7-mile walks and 14,000 steps a day was followed by a…
-
Long COVID with heart block, hearing loss and neuropathy, no benefit from prednisone
A 30-year-old man fell ill in September 2024 with a probable COVID infection, then developed third-degree heart block needing a pacemaker, POTS-like heart-rate swings, sudden right-ear hearing loss and spreading pins and needles and numbness. Prednisone…
-
Four years of long COVID breathlessness and brain fog, now back to normal after Singulair
A 21-year-old man had COVID-19 in January 2021, at age 16, and then lived with persistent shortness of breath and brain fog for four years. Supplements and a pacemaker did not resolve his symptoms. In 2025, two days after starting Singulair (montelukast), he…
-
Long COVID chest pain and months laid up, somewhat better with colchicine and prednisone
A Reddit user who caught COVID in early 2020 developed myopericarditis, costochondritis, dysautonomia and chronic breathlessness, with chest pain at 9-10/10 and months spent laid up. Colchicine and prednisone eased the heart and lung symptoms, and physical…
The first 6 credit Pacemaker for their improvement; the other 5 tried it without crediting it.
ME/CFS · 3 people, few people
All 3 people who tried it
-
ME/CFS fatigue, pacemaker didn't really help, wrist device inaccurate
The person has ME/CFS and had a pacemaker implanted hoping it would lessen their fatigue, but says it did not really help; they still have underlying heart issues and find it hard to tell PEM from their heart playing up. They also use a Visible wrist device,…
-
With ME/CFS, low-dose naltrexone left them a little better, doing two things most days
This Reddit user, ill with ME/CFS for an unstated time, took low-dose naltrexone for several years, raising the dose to 6 mg, and called it very helpful: they could go out for lunch with friends, though nothing else that day. Later they reported feeling a…
-
Bedridden before ME/CFS, improved on SPM-Active, then relapsed to mostly housebound
Pebble 99607 was bedridden with Lyme disease for months before it became ME/CFS, and has been ill for over a decade. IV antibiotics, weekly deep-tissue massage and the supplement SPM-Active each brought gains, SPM-Active letting her walk a mile daily without…
None of them credit Pacemaker for their improvement.