Mostly housebound with severe ME/CFS, somewhat better with medical cannabis
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- May 2025
In their words
- Condition: ME/CFS
i am on PIP for severe M.E.
In context ↗ - At worst: Severe
This has changed me from being mostly housebound/chairbound to being able to help with daily stuff even some shopping.
In context ↗ - Now: Somewhat better
This has changed me from being mostly housebound/chairbound to being able to help with daily stuff even some shopping. Usually if i push exertion over 30 mins i get a PEM crash but this is still an improvement.
In context ↗
Read from 20 of their posts and comments; links to the 10 this page draws on
Summary
A UK patient diagnosed with severe ME was mostly housebound or chairbound before a private medical cannabis prescription about two years before 2024. They credit it with enabling them to help with daily tasks and some shopping, though exertion over 30 minutes still triggers a PEM crash. It also eases pain, anxiety and sleep; they call it symptom management.
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What they tried
What they credit
Also tried
Their words about each treatment
- medical cannabis · Helped
This has changed me from being mostly housebound/chairbound to being able to help with daily stuff even some shopping.
In context ↗ - medical vaporiser (Storz + Bickel Volcano) · Not said
medical vaporiser. Storz + Bickel Volcano
In context ↗ - duloxetin · No change
I have pointed out to them the lack of any benefits and the response is to continue regardless.
In context ↗ - antibiotics · No change
had to take a few courses of antibiotics very recently, and may still need more. they have not made me feel any worse
In context ↗ - triptans · No change
I have cluster headaches and the triptans and triptylines did not help.
In context ↗ - O2 tank and mask · Helped a lot
Only thing that did was an O2 tank and mask and as long as i get on the oxygen soon enough the pain will only last up to an hour instead of days
In context ↗
Approaches: Other drugs and medicines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2022 | severe ME, mostly housebound and chairboundThis has changed me from being mostly housebound/chairboundIn context ↗ | Severe |
| 2024-02-17 | able to help with daily tasks and some shopping, but exertion over 30 minutes brings a PEM crashi was prescribed medical cannabis 2 years ago and the difference it has made is amazingIn context ↗ | Moderate |
| 2024-04-05 | a period when they could not get their medical cannabisHaving recently had a time where i was unable to the mediweed i can confirm it is helping greatlyIn context ↗ | Not stated |
| 2025-05-24 | still using prescribed cannabis strains for daytime energy and sleepim prescribed cannabis for my CFS, some strains are for daytime and give me ''energy'' and others are to help with sleep.In context ↗ | Moderate |
Adverse events
- Cannabis (THC, marijuana)“i had to persevere and wait until the docs got the right strain that gave no 'hashover' and provided energy for me” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Usually if i push exertion over 30 mins i get a PEM crash but this is still an improvement.
In context ↗ - Pain & fibromyalgia
it is helping greatly with pain, general anxiety and especially sleep
In context ↗ - Sleep problems
I wish it was good for me for restless sleep, we havent figured out the best for me in that situation.
In context ↗ - Headaches & migraine
I have cluster headaches and the triptans and triptylines did not help.
In context ↗ - Light & noise sensitivity
i cant watch a TV but the brightness, blue light and night modes available of pc monitors and laptops have made it so
In context ↗
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