ME/CFS
No benefit
ME/CFS with chronic fatigue and pain, far from normal with no real progress
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Apr 2025
In their words
- Condition: ME/CFS
I have Sjogrens, Chronic Fatigue/Pain, and hEDS.
In context ↗ - Now: No benefit
No real progress.
In context ↗
Summary
A person with Sjogren's, chronic fatigue/pain and hEDS said Plaquenil, LDN and Celebrex helped a bit but left them far from a normal life, with no real progress. Zyrtec 10 mg twice daily made them much more tired with body aches, and they stopped it after two days. In April 2025 they ordered NAD+ injections, hoping for even a 20% improvement.
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What they tried
Their words about each treatment
- Zyrtec · Worse
My rheumatologist suggested I try 10mg twice a day as it helps some people. I started two days ago and I feel terrrible.
In context ↗ - Plaquenil · Helped
the meds I do take help a bit (Plaquenil, LDN, celebrex if needed)
In context ↗ - NAD+ injections · Not said
In a moment of desperation last week, I ordered NAD+ injections from AgelessRx.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| — | onset of chronic fatigue/pain alongside Sjogren's and hEDSI have Sjogrens, Chronic Fatigue/Pain, and hEDS.In context ↗ | Not stated | |
| 2024-03-15 | felt terrible on Zyrtec 10 mg twice a day and stopped itI started two days ago and I feel terrrible.In context ↗ | Not stated | Cetirizine (Zyrtec) |
| 2025-04-23 | medications helping only a bit, still far from a normal life; ordered NAD+ injectionsno where near getting me close to a normal lifeIn context ↗ | Moderate |
Adverse events
- Cetirizine (Zyrtec)“I started two days ago and I feel terrrible. I’m so tired that I’ve got body aches and I can’t stay awake.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
I have Sjogrens, Chronic Fatigue/Pain, and hEDS.
In context ↗