ME/CFS at a low point, mostly using a cane, somewhat better with rest and learning limits
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Nov 2022
In their words
- Now: Somewhat better
Once I began to rest and stop clinging to the past, I started to feel better.
In context ↗
Read from 7 of their posts and comments; links to the 4 this page draws on
Summary
Mesa 85304 thinks they have ME/CFS, along with POTS and sleep issues. After about two years of trying to keep up their activity level, their function fell to one of its lowest points, and they mostly use a cane for balance and pain. Resting and learning their limits brought some improvement, and they were doing a good amount of walking and yoga. They were considering getting their own wheelchair, especially for flare days, despite anxiety about others' opinions. A COVID-19 infection in September 2022 was worsening their symptoms.
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What they tried
What they credit
Also tried
Their words about each treatment
- trying to keep up my activity level · Much worse
Over about 2 years of trying to keep up my activity level, my function fell to one of the lowest points.
In context ↗ - rest · Helped
Once I began to rest and stop clinging to the past, I started to feel better.
In context ↗ - focusing on what my body is saying · Helped
What's helped me prevent pushing too far is focusing on what my body is saying.
In context ↗ - drinking my meals · Helped
Drinking my meals has been very helpful for me when even the thought of food feels awful.
In context ↗ - walking and yoga · Not said
I've been doing a good amount of walking and yoga and am thinking of just adding some light, slow weights.
In context ↗ - decongestant · Not said
I'm taking all my normal meds, plus a decongestant and extra saline spray.
In context ↗
Approaches: Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2 years after onset: the story doesn’t say how ill they were before that. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| about two years into the illness | kept pushing activity and function fell to one of its lowest pointsOver about 2 years of trying to keep up my activity level, my function fell to one of the lowest points.In context ↗ | Moderate | |
| — | began resting and respecting limits, started to feel betterOnce I began to rest and stop clinging to the past, I started to feel better.In context ↗ | Moderate | Pacing and the energy envelope |
| September 2022 | COVID-19 infection, symptoms kept worseningI've had COVID symptoms for almost 4-5 days now. I finally tested positive yesterday. My symptoms have just been continuously getting worse.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Before getting sick I used to practice until collapse, but now if I do that, I'll have severe effects for days.
In context ↗ - Gut problems
The nausea, lack of appetite, and post-food stomach issues have gotten far worse for me since having CFS.
In context ↗ - Pain & fibromyalgia
I mostly use the cane for balance for my POTS and for pain and leg collapsing.
In context ↗ - Muscle weakness
I'm now having trouble walking without my cane because of how tired my body is.
In context ↗ - Anxiety & low mood
I'm honestly just scared.
In context ↗
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