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Long COVID Mild → recoveredIll 22 months before improving or writing

Long COVID with post-exertional malaise, now back to normal after general anaesthesia

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
22 months
Last post
May 2025
In their words
  • Condition: Long COVIDthe LC brought on the PA In context ↗
  • At worst: MildI was on the verge of stopping work because of extreme fatigue and PEM. In context ↗
  • Now: RecoveredNormal. Energy was back, no brain fog, I could walk 5 miles without repercussions. In context ↗
  • Began after: COVIDless so than what I had with LC
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Pelican 62011 had long COVID with extreme fatigue and post-exertional malaise for about 22 months, close to stopping work. Modafinil helped for a fortnight, then left them struggling for energy with hot flashes and breathlessness. The day after general anaesthesia for cataract surgery they felt normal, energy back, no brain fog, walking five miles without repercussions, and it held. They were later diagnosed with psoriatic arthritis.

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What they tried

Also tried

general anesthesia for cataract procedure· Helped a lotmodafinil· Worse
Their words about each treatment
  • modafinil · WorseI was on modafinil for a month and for last two weeks it didn’t provide same boost, but rather left me struggling for energy, having hot flashes, and occasionally out of breath (which did not happen before). In context ↗
  • general anesthesia for cataract procedure · Helped a lotThen I had general anesthesia for 15-20 minutes for cataract procedure. The next day I felt fine, the sort of fine I hadn’t felt for 22 months. Normal. Energy was back, no brain fog, I could walk 5 miles without repercussions. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
onsetlong COVID with extreme fatigue and post-exertional malaiseI was on the verge of stopping work because of extreme fatigue and PEM. In context ↗Mild
20 moclose to stopping work from extreme fatigue and PEMMild
22 mofelt normal the day after general anaesthesia for a cataract procedureThe next day I felt fine, the sort of fine I hadn’t felt for 22 months. Normal. Energy was back, no brain fog, I could walk 5 miles without repercussions. In context ↗Recovered
2025-05-04no long COVID recurrence but diagnosed with psoriatic arthritis with fatigue flaresAnd I have not had a recurrence but I subsequently got diagnosed with psoriatic arthritis In context ↗Recovered

Adverse events

  • Modafinil / armodafinil“I was on modafinil for a month and for last two weeks it didn’t provide same boost, but rather left me struggling for energy, having hot flashes, and occasionally out of breath (which did not happen before).” In context ↗ Side effects

Symptoms mentioned

Their words about their symptoms

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