Miruvor

Brain fog

178 accounts mention brain fog. Here is what those people tried and how it went.

32%
recovered fully or nearly
57 of 178
56%
improved (substantial or partial)
100 of 178
7%
relapsed
13 of 178
5%
no benefit
8 of 178

How it went

Did it last?

  • 41 of 178 said the benefit wore off (including the 13 who relapsed).
  • 18 of 178 needed to keep up a treatment to stay well.

Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.

Outcome describedAccountsShare
Full recovery3419%
Near-full2313%
Substantial4928%
Partial5129%
Relapsed137%
No benefit84%

By how ill people were

Severity at worstHow it wentnRecovered
Mild250%
Moderate3730%
Severe7349%
Very severe2330%

43 accounts don’t say how ill the person was.

Who published these accounts

Sells a treatment or program29 accounts
69%
Recovery advocacy site22 accounts
82%
Independent (blog, forum, news)127 accounts
15%

Right-hand number: share describing a full or near-full recovery. Pages that sell something, and advocacy sites, tend to publish only the successes.

What people with brain fog tried

Within the accounts on this page. Grey numbers rest on fewer than 10 accounts.

All 178 accounts

  • Camici et al: IVIG treatment for Long COVID, a case report

    Full recovery Long COVID Severe forums.phoenixrising.me Jul 2026

    This previously healthy 39-year-old man received a course of IVIG (intravenous immunoglobulin) for Long COVID after other multidisciplinary interventions had failed to help, though the forum thread does not reproduce the specific dose, number of infusions,…

  • Brain retraining is nervous system regulation

    Near-full Long COVID SevereIll 5 years amythetonic.substack.com · sells Jul 2026

    Amy credits the "CFS Recovery" nervous-system-regulation program with turning her case around, alongside daily red-light therapy (about 10 minutes, at least four mornings a week, using a box she bought roughly three years ago) and work with a therapist who…

  • Jonathan Groves' Story

    Full recovery ME/CFS SevereIll 1.58 years the-recovery-hub.org · sells Jun 2026

    Jonathan practiced Ekadashi Upavasa fasting (fasting on the 11th lunar day) combined with autophagy principles, an elimination diet cutting out all processed food, caffeine, sugar and alcohol, the Silva Method, meditation, breathwork, affirmations and…

  • The liminal space between illness and recovery

    Near-full Long COVID SevereIll 5 years amythetonic.substack.com · sells May 2026

    Credits brain retraining and pain reprocessing. Amy was ill 5y with severe long COVID and is described as almost fully recovered. 95-98% recovered; occasional fatigue and brain fog.

  • SGB for Long COVID with PTSD, Anxiety and Chronic Pain: case report

    Substantial Long COVID SevereIll 6 yearsEffect faded s4me.info 2026

    This 58-year-old chef received sequential bilateral stellate ganglion blocks, left side then right side a week later, in January 2023, with repeat right-sided blocks in December 2024 and September 2025; the injected medications and doses are not specified.…

  • Three Long-term Long COVID Patients, Three Rapid Recoveries

    Near-full Long COVID SevereIll 1 yearEffect faded healthrising.org Dec 2025

    Pemivibart (Pemgarda), a monoclonal antibody infusion whose effect the article says typically lasts about a couple of months, was given to three long-term long COVID patients. A 70-year-old woman, sick for nearly a year, had her brain fog, breathlessness and…

  • Volker Stahl's Recovery Story

    Near-full Long COVID ModerateIll 1.5 years the-recovery-hub.org Aug 2025

    Managed long COVID mainly through pacing with a heart rate monitor, gentle yoga and light cycling, unspecified supplements, a COVID booster vaccination, and a psychological reframing approach inspired by Professor Paul Garner's published recovery account. He…

  • Blood and circulation

    Substantial ME/CFS SevereIll 16 years healthrising.org Aug 2025

    Combined having a problem tooth pulled with a long-running Linus Pauling-style protocol for peripheral artery disease, Ayurvedic remedies, infrared light therapy, a course of 32 magnesium-sulfate infusions, and low-dose naltrexone above 2mg per day. Had PAD…

  • Stuart Porter's Recovery Story

    Substantial ME/CFS Very severeIll 5 yearsEffect faded the-recovery-hub.org · sells Aug 2025

    Used the ANS Rewire program alongside a paid one-on-one recovery program with two CFS coaches, then built his own RESTAND framework after studying 300+ other recovery stories over 600+ hours; he was also prescribed GTN (glyceryl trinitrate) by his doctor. He…

  • Karen Wright's Story

    Near-full Long COVID SevereIll 3 years the-recovery-hub.org · sells Jul 2025

    Karen started with a low-histamine diet that brought overnight improvement, then moved to a broader anti-inflammatory diet, alongside pacing, Acceptance and Commitment Therapy through the NHS Long COVID service, breathwork, meditation, yoga, counselling and…

  • HUGE response to Vitamin K2 MK7

    Substantial ME/CFS forums.phoenixrising.me May 2025

    pamojja reports that after 16 years of daily high-dose K2 (MK-7 plus MK-4), the brain fog that used to strike specifically during PEM crashes has been in remission for the last 6 years. This is a long-duration, well-sustained partial benefit (brain fog only,…

  • JAK1 inhibitor Rinvoq quickly returns severely ill ME/CFS patient to health - Parts I and II

    Partial ME/CFS forums.phoenixrising.me May 2025

    Took Rinvoq (upadacitinib) for two months without stating a dose, and describes it as not an easy drug to take. The gains were concentrated in the autonomic nervous system: orthostatic intolerance normalised with no further blood pressure drop or pre-syncope…

  • HUGE response to Vitamin K2 MK7

    Partial ME/CFS forums.phoenixrising.me May 2025

    Relatively new to ME/CFS, this poster escalated vitamin K2 MK7 drops to 7mg a day and on only the fourth day reported brain fog hugely clearing, more energy and wakefulness, feeling like a direct street to remission. He immediately hedges that he does not…

  • Super Gut program finally helped my brain fog

    Substantial ME/CFS ModerateIll 15 years inspire.com May 2025

    Posting as "brad_," the patient tried Freddd's B12 protocol (2010-2012, including two B12 injections daily), mercury chelation (completed 2015), unsuccessful treatment for mycoplasma and HHV-6 infections, a red-light Vielight neuro helmet added in 2024, and…

  • Experience with vagus nerve stimulation

    Substantial ME/CFS healthrising.org Mar 2025

    Auricular vagus nerve stimulation: daily use of an Amofit S+ ear-clip device, ongoing for about a year at the time of posting. She has ME/CFS with significant brain fog and cognitive impairment beforehand. Concentration improved, brain fog disappeared, and…

  • Primal Trust testimonials: Reese

    Substantial Long COVID SevereIll 3 years primaltrust.org · sells Feb 2025

    Reese used the Primal Trust Regulate course, purchased as a 3-month package in January 2025, after struggling with Long COVID for almost three years. She reports her brain fog is gone, her eyesight has improved, and she feels stronger than she has in years,…

  • 18/6 intermittent fasting has benefitted me greatly

    Partial ME/CFS SevereIll 4 years forums.phoenixrising.me Jan 2025

    The same EBV-triggered patient at an earlier stage. He started 18/6 intermittent fasting in September 2024 alongside liposomal glutathione, noticing benefit within a week. Self-rated fatigue improved from 7 out of 10 to 5 and brain fog from 8 to 3 or 4, with…

  • Buchinger fasting

    Substantial ME/CFS SevereIll 10 years forums.phoenixrising.me 2025

    Ten years into post-infectious ME/CFS so severe that cleaning their flat or studying was "unthinkable," ilivewithcfs ran themself through repeated unsupervised Buchinger-style fasts of about 200-250 kcal/day from juice and broth (later a 2-day prep, 7-day…

  • People with Long COVID turn to online drug markets (Tiff)

    Partial Long COVID Effect faded thesicktimes.org Dec 2024

    Tiff, in the US, took a 10-day course of Paxlovid plus sofosbuvir, a hepatitis C antiviral, that a friend brought back from India, after having Long COVID since 2020. She said she felt like she did before 2020, with her energy back, no PEM crash and no brain…

  • Low oxalate diet noticeably improved my fatigue and brain fog after 3 days

    Substantial ME/CFS Moderate forums.phoenixrising.me Nov 2024

    Hip started a low-oxalate diet plus calcium-with-meals and daily magnesium and reports significant improvement in fatigue, brain fog and mental/anxiety symptoms appearing within just 3 days. He calls the brain fog and "zombie-like mental vagueness" clearly…

  • Jennifer's Story

    Near-full ME/CFS SevereIll 15 years the-recovery-hub.org May 2024

    Jennifer followed an anti-inflammatory diet based on Andrew Weil and Patrick Holford's principles, alongside regular massage therapy, acupuncture, deep relaxation and meditation practices, and a custom-designed graded walk-training program, after early…

  • A bit of a breakthrough

    Substantial ME/CFS ModerateIll 13 years inspire.com May 2024

    Posting as "bradmcblain," the patient used chelation therapy for mercury toxicity, Freddd's B12 Protocol with daily methylcobalamin injections, methylene blue (started 3 months before the post), and — added 2 weeks before posting — a Vielight Neuro Gamma…

  • Bromelain+NAC are really helpful to me

    Relapsed ME/CFS Effect faded forums.phoenixrising.me Apr 2024

    On the same NAC-plus-bromelain protocol, initially had a "large improvement in brain fog" and better blood flow, but the effect "regressed within a week." Attributes the fade to underlying immune dysfunction that anti-inflammatory action alone could not…

  • Bromelain+NAC are really helpful to me

    Partial ME/CFS forums.phoenixrising.me Apr 2024

    Took 600mg NAC plus 1000mg bromelain (1200 GDU) twice daily on an empty stomach for pre-COVID-onset ME/CFS, for 12 days before stopping due to insomnia. By day 5 reported "more energy, less brainfog, less joint pain and just felt better overall," and notes…

  • Supplementation with L-Arginine + Vitamin C has beneficial effects

    Full recovery Long COVID ModerateIll 1.5 years mayoclinic.org Mar 2024

    L-citrulline powder, 3g per dose with 90mg of vitamin C powder, taken twice daily, was credited by searcher1 with resolving her long COVID symptoms. She had been ill with fatigue, breathing problems, muscle aches and brain fog since September 2022. After…

  • Nicotine patches for long covid

    Partial Long COVID Moderate amythetonic.substack.com Feb 2024

    Amy trialed CVS-brand nicotine patches for long COVID, starting at 3.5mg, titrating up to 7mg, then back down to 3.5mg over a 14-day cycle, applying a fresh patch daily around 10am and rotating sites between calves, thighs and arms. Her long COVID brain fog…

  • From Skeptic to Advocate: Wes Ely, Long COVID and his Baricitinib Trial

    Partial Long COVID Effect faded healthrising.org Jan 2024

    Nik took baricitinib for a few months as part of long-COVID treatment; the page does not say how long or how severely Nik had been ill beforehand. The drug worked well, reducing both post-exertional malaise and brain fog. Nik had to stop taking it, though,…

  • The Nicotine Patch: Long COVID, ME/CFS and Fibromyalgia (Patient 2)

    Full recovery Long COVID Severe healthrising.org Dec 2023

    This second case-series patient used a 7.5 mg/24h nicotine patch daily, a dose that was doubled at one point by mistake, for concentration problems, fatigue and post-exertional malaise. Her concentration was restored by day four, and fatigue and PEM were…

  • My experience on plasmalogens

    Partial ME/CFS Moderate forums.phoenixrising.me · sells Nov 2023

    TracyD took the commercial plasmalogen product ProdromeGlia twice daily for about two months and says her "restless legs" at night seemed to go away and brain fog was "significantly weaker," with some days of continued mild restlessness. She describes gains…

  • Success from Probiotics

    Substantial ME/CFS ModerateIll 1.5 years forums.phoenixrising.me Nov 2023

    Took a 14-strain Jamieson probiotic (2 capsules twice daily) for about two weeks while gradually reintroducing oats after roughly 1.5 years of fermentable-fiber intolerance causing brain fog, aches and malaise. After a few days he could increase oat intake…

  • My Long Covid Recovery Story

    Substantial Long COVID SevereIll 1.67 years positivelycovid.org Jun 2023

    Roberto's recovery centered on polyvagal-theory nervous-system regulation exercises, whose specifics aren't detailed, combined with psychological work addressing childhood trauma and perfectionism patterns he linked to his illness. He had been hospitalized…

  • List of ME/CFS Recovery and Improvement Stories (page 11 discussion)

    Partial ME/CFS Severe forums.phoenixrising.me May 2023

    Dude reported a 20-30% improvement within days of starting 2.5mg aripiprazole every other day, with less brain fog, pain and fatigue, and returned to 19 hours a week of work as a software developer. The gain was described as a meaningful but partial…

  • AXA1125 had a successful trial in Long Covid patients, I'm trying it on myself

    Partial Long COVID forums.phoenixrising.me May 2023

    Katabasis, describing long-COVID brain fog, said that after a month or two on guanfacine plus NAC she could read for twenty to thirty minutes at a stretch versus about ten before. She is unsure whether one component or the combination was responsible.

  • My gigantic story going back to 1996, treatment plan included

    Partial ME/CFS Very severeIll 27 years forums.phoenixrising.me Apr 2023

    Five days into a thiamine/magnesium/potassium-focused protocol after nearly three decades of worsening illness, TexRob reports restored temperature regulation, normalized sweating, resumed GI and urinary function, and reduced brain fog/neuropathic pain,…

  • Long COVID/ME-CFS Patient Goes into Remission After 3 Weeks on the Antiviral Sofosbuvir

    Substantial Long COVID SevereIll 2 yearsEffect faded forums.phoenixrising.me Apr 2023

    After 2 years of severe, housebound long COVID (POTS, MCAS, brain fog, gut issues, severe weight loss), this patient took standard-dose Harvoni (sofosbuvir/ledipasvir), an antiviral, for 3 weeks and reported the POTS, brain fog and MCAS symptoms resolving to…

  • A Patch On It: Melissa's Cerebral Spinal Fluid Leak ME/CFS Recovery Story

    Near-full ME/CFS Very severeIll 3.5 years healthrising.org Apr 2023

    Melissa's health declined after a jarring spinal injury in 2019 and she spent a year bedbound with extreme cognitive impairment, having been misdiagnosed with tickborne illness, narcolepsy and POTS. A CT myelogram finally found a spinal fluid leak, and five…

  • Leon Williams

    Full recovery Long COVID SevereIll 2 years longcovidcured.com Mar 2023

    Leon Williams recovered using a mind-body/neuroplasticity approach rooted in Dr. John Sarno's Tension Myositis Syndrome (TMS) framework, practicing somatic tracking meditation, expressive writing, breathwork and general meditation, with gardening as a…

  • After 37 Years Flo Finds Her Answer

    Full recovery ME/CFS SevereIll 37 years healthrising.org · sells Feb 2023

    Flo lived with ME/CFS, fibromyalgia and migraines for 37 years, mostly homebound with severe brain fog, vertigo and light and sound sensitivity. She worked through decades of bodywork, energy and conventional therapies with limited success. EFT tapping and…

  • Jennifer

    Substantial Long COVID ModerateIll 1.17 years longcovidcured.com Jan 2023

    Jennifer combined three weeks of lymphatic drainage physiotherapy (started June 2022) with a mind-body/nervous-system retraining approach drawn from Alan Gordon's book The Way Out, the Curable app, Annemarieke Fleming's Dutch fatigue book Je vermoeidheid te…

  • Gary

    Full recovery Long COVID SevereIll 6 months longcovidcured.com Jan 2023

    Gary's recovery is credited to Nicole Sachs' free YouTube series "Healing Yourself" (Parts 1-4) followed by her paid course Freedom from Chronic Pain, plus Dr. Howard Schubiner's mind-body material at unlearnyourpain.com, applying pain-reprocessing…

  • Impact of extended-course Paxlovid in established Long COVID (Case 7)

    Relapsed Long COVID SevereIll 11 monthsEffect faded pmc.ncbi.nlm.nih.gov 2023

    Case 7, a 29-year-old man about 10 months into Long COVID/ME since July 2022 with extreme fatigue, PEM, tachycardia, POTS, persistent headache, brain fog, chest pain and shortness of breath, took a 15-day extended Paxlovid course in May 2023 while also on…

  • Impact of extended-course Paxlovid in established Long COVID (Case 5)

    Near-full Long COVID SevereIll 3 yearsEffect faded pmc.ncbi.nlm.nih.gov 2023

    Case 5, a woman with roughly three years of Long COVID since March 2020 causing respiratory issues, fatigue, PEM, brain fog and body aches that had stopped her from exercising daily, took a 10-day extended Paxlovid course in June 2023 while otherwise only…

  • Impact of extended-course Paxlovid in established Long COVID (Case 4)

    Full recovery Long COVID SevereIll 6 monthsEffect faded pmc.ncbi.nlm.nih.gov 2023

    Case 4, a 51-year-old man about 6 months into Long COVID with fatigue, daily headaches, brain fog, mental exhaustion, PEM, racing heart, palpitations, tinnitus and visual/sensory disturbances, took a 15-day extended Paxlovid course in March 2023 alongside…

  • Impact of extended-course Paxlovid in established Long COVID (Case 2)

    Full recovery Long COVID SevereIll 11 monthsEffect faded pmc.ncbi.nlm.nih.gov 2023

    Case 2, a 45-year-old woman about 11 months into Long COVID with orthostatic intolerance, tachycardia, short-term memory loss, word-finding trouble, fatigue, PEM and MCAS symptoms, took a 15-day extended course of Paxlovid (nirmatrelvir/ritonavir) in…

  • The Guanfacine Gambit: Treating Brain Fog in Long COVID

    Partial Long COVID Ill 1.5 years healthrising.org Dec 2022

    Trudy takes guanfacine together with NAC, on a modified schedule of half the prescribed guanfacine dose every other day and a full pill on the days between. She had already had fibromyalgia for over 25 years and had been dealing with long COVID for 1.5…

  • Healing from Long Covid with water fasting

    Near-full Long COVID SevereIll 11 months waterfasting.org · sells Oct 2022

    Eleven months into Long COVID with chest pain, breathlessness, anxiety and depression, Luke did a 28-day water-only fast built around three short dry-fasting stretches of 36, 60 and 84 hours roughly a week apart. Fatigue and brain fog cleared within the…

  • A Rapamycin Resurgence: An MD Moves the Needle on his ME/CFS

    No benefit ME/CFS Very severeIll 10 years healthrising.org Jul 2022

    Liver derivative complex (Nexavir) was one of more than a dozen treatments he listed trying, alongside antidepressants, antivirals, erythromycin, doxycycline, NAC and others, with no dose or duration specified for it individually. He had been very severely…

  • I am back to myself – fun with family and friends, working in a full-time job that I love!

    Full recovery Long COVID Very severeIll 5 monthsEffect faded recoverynorway.org May 2022

    Took a three-day online Lightning Process course over Zoom, at a cost of £800, after her GP suspected ME/CFS and suggested she might need a wheelchair, and then did the course's mental exercises "around 100 times a day for the first four months." Her Long…

  • Chrissy Zmijewski

    Full recovery Long COVID Moderate longcovidcured.com May 2022

    This page names no specific program, drug, dose, or therapy for her personally; it is a short video-introduction page that frames her recovery within the site's general mind-body approach and points readers to a fuller account on an external blog. She is…

  • Ivermectin for Fibro.

    Partial ME/CFS Ill 41 years healthrising.org May 2022

    Ivermectin, taken in an initial course of five doses, was tried by someone with a chronic multi-symptom illness (brain fog, muscle aches, fatigue, chemical sensitivities) dating to 1981, based on a hypothesis of ongoing parasitic infection. After the initial…

  • Shannon Sims

    Full recovery Long COVID SevereIll 1 year longcovidcured.com Mar 2022

    She credits her recovery to mind-body practices including meditation, guided imagery, expressive writing, biofeedback, and nature exposure, with no drug, supplement, or named branded program cited on the page. She became ill in March 2020 with a two-week…

  • A treatment that helps me tremendously

    Partial ME/CFS SevereIll 10 years forums.phoenixrising.me Mar 2022

    Ill since 2012, this poster built daily direct sun exposure from five minutes to several hours a day over a few years, alongside high-dose vitamin D3. In summer he can do housework, see friends, sail and garden, going from roughly thirty per cent to over…

  • Overcoming long Covid by fasting

    Substantial Long COVID SevereIll 3 months buchinger-wilhelmi.com · sells Jan 2022

    Michel Falck, a 60-year-old wine dealer from Strasbourg, had lost his sense of taste and smell, could not concentrate enough to read, had not been able to play piano and struggled with language for two and a half months after a COVID infection. At the…

  • Yesim Nevin

    Substantial Long COVID positivelycovid.org Jan 2022

    The source names no specific treatment. Yesim had long COVID and reports a substantial improvement. Brain fog had lifted away.

  • List of ME/CFS Recovery and Improvement Stories (page 4 discussion)

    Partial ME/CFS Severe forums.phoenixrising.me 2022

    crowtor, who progressed from bed-bound to housebound, used three separate targeted interventions: a low-flow oxygen concentrator for brain fog, a bilevel ResMed AirCurve machine for sleep, and very-high-dose ubiquinol plus CoQ10 to blunt PEM. Each addressed…

  • A farewell letter to chronic fatigue

    Full recovery ME/CFS ModerateIll 6 years recoverynorway.org Dec 2021

    Svein Tore Røynestad took a Lightning Process course led by Live Landmark at Easter 2021, after about six years of chronic fatigue (also referred to as ME) that began in autumn 2015. He describes low energy, flu-like feelings, restlessness and poor…

  • Bye-Bye Fight or Flight? Stellate Ganglion Blocks (Patient Two)

    Full recovery Long COVID SevereIll 7 months healthrising.org · sells Dec 2021

    This second patient received the same stellate ganglion block procedure, injections on both sides of the neck, after seven months of severe post-COVID cognitive difficulties requiring occupational, physical and speech therapy, along with profound memory…

  • Bye-Bye Fight or Flight? Stellate Ganglion Blocks (Patient One)

    Full recovery Long COVID ModerateIll 8 months healthrising.org · sells Dec 2021

    This patient received a stellate ganglion block (SGB) - injections on both sides of the neck given over two days, each session about 30 minutes - after eight months of post-COVID loss of smell and taste, severe fatigue, cognitive problems, sleep trouble and…

  • Abilify plus LDN returns retired clinical psychologist to 80% health for two months

    Relapsed ME/CFS SevereIll 11 yearsEffect faded healthrising.org Nov 2021

    Marvin, a retired clinical psychologist, took low-dose Abilify (0.5 mg) combined with low-dose naltrexone (2.5 mg) from a compounding pharmacy after 11 years of fatigue, post-exertional malaise, cognitive problems, and unrefreshing sleep. The combination…

  • My brain maintained my condition by pondering questions such as: 'How am I doing today, which symptoms are the hardest, and consequently; what will I be doing today?'

    Near-full Long COVID SevereIll 1.5 years recoverynorway.org Oct 2021

    Minja's recovery centred on gradual "baby steps" increases in activity combined with mindfulness, breathing exercises and progressive relaxation (drawing on teacher Rick Hanson), Brené Brown's podcast "Unlocking Us," and therapy she had previously used for…

  • I realized there was nothing spectacularly wrong with my body. My fear of never getting better had kept me from getting better!

    Near-full Long COVID Very severeIll 8 months recoverynorway.org Sep 2021

    Esther's breakthrough came after hearing a podcast featuring psychotherapist Nicole Sachs and "Lieke from Amsterdam," which led her to journal about her emotions and read books by Dr. Sarno and Nicole Sachs, following roughly eight months of illness that…

  • Paul Garner

    Full recovery Long COVID SevereIll 9 monthsEffect faded longcovidcured.com Jul 2021

    At seven months post-infection he was connected with a Norwegian psychology PhD candidate who had recovered from post-viral fatigue and taught him that unconscious defence mechanisms were generating false fatigue alarms, and that he could retrain his bodily…

  • Recovery stories: parasites cleanse

    Partial ME/CFS forums.phoenixrising.me Apr 2021

    In 2006, took Paragone (an herbal antiparasitic supplement) for a couple of months alongside a very-low-carb diet, and reports it "cut the brain fog I'd grown up with by about 70%." Explicit that this did not touch the underlying ME/CFS, which they attribute…

  • Luteolin

    No benefit ME/CFS ModerateEffect faded forums.phoenixrising.me Mar 2021

    Luteolin, taken as a 100mg luteolin-plus-rutin capsule from a 30-capsule bottle, had no significant effect for Wishful on the same forum thread. She contrasted this with apigenin, a related flavonoid, which gave her a slight reduction in brain fog that faded…

  • Abilify Shows Promise in Retrospective Chronic Fatigue Syndrome Study

    Partial ME/CFS Very severeEffect faded healthrising.org Mar 2021

    The piece states that Abilify (aripiprazole) enabled Whitney Dafoe, one of the most severely affected ME/CFS patients on record, to communicate again for the first time in years, but it does not give his personal dose, treatment duration, or other individual…

  • I finally fixed post-COVID fatigue

    Substantial Long COVID ModerateIll 3 monthsEffect faded forums.phoenixrising.me Feb 2021

    D.Rabbie says a combination of the vasoactive drug heptaminol with cinnarizine, and later with modafinil, gave him "better energy and mental clarity" that he felt exceeded his pre-COVID baseline, after two to three months of unresolving post-COVID fatigue…

  • Jason: Recovery From Long-Haul COVID, a DNRS Success Story

    Full recovery Long COVID SevereIll 9 months retrainingthebrain.com · sells 2021

    Credits brain retraining. Jason was ill 9mo with severe long COVID and is described as fully recovered. Myocarditis and brain fog; back to high-intensity exercise.

  • A COVID-19 Long Hauler Case Report Points to Autoimmunity and IVIG

    Substantial Long COVID SevereEffect faded healthrising.org Oct 2020

    Received IVIG at 2g/kg monthly for two months, then reduced to 1g/kg monthly because of IVIG-induced headaches, for post-COVID symptoms that began two weeks after her acute infection resolved: severe leg pain, burning in her feet and hands, blurred vision,…

  • Dermorphin Experience - Very Impressive Results

    Substantial ME/CFS forums.phoenixrising.me Sep 2020

    Took dermorphin (an opioid peptide from Amazonian frog skin secretions) at 170mcg subcutaneously every 3-4 days, and over the 9 days documented reports brain fog reduced "almost to pre-ME/CFS levels" along with better energy, unaided sleep, and clearer…

  • Does anyone with CFS get back to 100% ever?

    Partial ME/CFS SevereIll 4 years forums.phoenixrising.me Aug 2020

    uglevod's treatment was the Marshall Protocol (MP, per mpkb.org), an antibiotic-based regimen; the post doesn't give specific drugs or doses, only that it was "brutal," especially in the first 1.5 years, with blood work resembling "mild chemo." The post…

  • Finally Found a Treatment...Can Anyone Please Explain This?

    Partial ME/CFS SevereIll 1 year forums.phoenixrising.me Jul 2020

    Took ITPP combined with cabergoline and reports energy restored, brain fog cleared and "85-90% of symptoms gone," feeling "back to my pre-CFS self" within about 24 hours of dosing. Went from severe/bedbound-leaning to mild on the combination. Effects last…

  • I was a mother with ME and two children sick with ME – There is hope!

    Full recovery ME/CFS SevereIll 13 years recoverynorway.org Jun 2020

    Anette completed a three-day Lightning Process course in November 2017 after 13 years of ME/CFS during which she was bedbound 15-20 hours a day with severe pain, cognitive impairment and sound/light sensitivity. Her son (ill 7 years) and daughter Viktoria…

  • ME/CFS patient goes into remission after taking GDF11

    Near-full ME/CFS SevereIll 15 yearsEffect faded forums.phoenixrising.me Apr 2020

    Ill for fifteen years and bedbound as recently as 2016, this patient self-injected the GDF11 protein subcutaneously every other day alongside an NMN supplement. After about two months he reported feeling one hundred per cent cured, with dramatic resolution…

  • The Temporary ME/CFS and Fibromyalgia Recovery Stories (anesthesia case)

    Relapsed ME/CFS SevereIll 10 yearsEffect faded healthrising.org Jan 2020

    A 53-year-old woman with severe ME/CFS and fibromyalgia, functioning at about 15 per cent, underwent an unrelated ten-hour surgery under general anaesthesia. Her functional level jumped to roughly 70 per cent, with brain fog, flu-like feelings and…

  • Fructose Malabsorption

    Partial ME/CFS healthrising.org Aug 2019

    Minimized dietary fructose to trace amounts, such as spinach and kale, after concluding her liver could not process it properly. Illness duration and severity are not detailed. Describes fructose exposure causing nausea, brain fog she calls weight on my…

  • Jennifer Brea's Chronic Fatigue (ME/CFS) Recovering Story

    Near-full ME/CFS SevereIll 8 years healthrising.org May 2019

    Underwent spinal surgeries over several weeks to correct craniocervical instability (CCI) and tethered cord syndrome, wore a neck collar (Philadelphia or Aspen Vista) during recovery, and found the drug Mestinon (pyridostigmine) helpful for symptoms. She had…

  • No magic was involved, no pills or medical stuff. Just my inner power and the power of my brain

    Full recovery ME/CFS SevereIll 1 year recoverynorway.org · sells Apr 2019

    Recovered through the Lightning Process, a brain-retraining course she took in London on the first available date after finding it online. She had been ill for about a year from September 2015, seeing immunologists, neurologists and cardiologists who…

  • Sirin Gnadeberg Shares How She Cured Her ME/CFS and POTS

    Full recovery ME/CFS SevereIll 5 years cfsunravelled.com · sells Apr 2019

    Sirin Gnadeberg added salt to her drinking water starting in April 2016, which significantly improved her POTS symptoms, then took 16 weeks of antibiotics after a Lyme specialist found elevated antibodies to Bartonella, Chlamydia and Mycoplasma (despite…

  • It has been important for me to feel ownership to my own process. I've been my own coach all the way

    Full recovery ME/CFS ModerateIll 9 years recoverynorway.org Mar 2019

    Torill Sorkmo credits a self-designed recovery approach combining meditation, mindfulness, visualisation and a focus on positive ("endorphin") thinking, developed after seeing a Gestalt therapist and a psychologist and after Dr Paul Kavli in Oslo diagnosed…

  • If I had let my symptoms stop me, I would never have been able to continue

    Substantial ME/CFS Very severe recoverynorway.org Jan 2019

    Lise used a self-directed graded walking program, starting at 100 metres on New Year's Day and building to a full 1.3km block after six months, alongside positive self-talk, gradual sensory exposure to light and sound, and progressively harder reading…

  • Burned out. A journey in and out of exile from life.

    Near-full ME/CFS ModerateIll 1 year recoverynorway.org Jan 2019

    Bård attended a three-day Lightning Process course about eight months after falling ill, and says he "declared myself healthy after the first day." He had been unable to work for about a year after his last working day in October 2015, following a burnout…

  • When I read my story today about my illness period, I can hardly believe how bad it was

    Near-full ME/CFS SevereIll 2.5 years recoverynorway.org Jan 2019

    Attended a three-day Lightning Process course in Oslo in September 2017, after eight hours of municipal cognitive therapy had earlier proved "incredibly effective" and helped her avoid a formal ME/CFS diagnosis. She had been severely ill for about 18 months…

  • It is awfully demanding when you are seriously ill, but it is well worth the effort!

    Full recovery ME/CFS SevereIll 7 years recoverynorway.org Jan 2019

    Took a Lightning Process course in November after seven years of ME/CFS, having initially been advised against it by the ME association. Before the course she was bedridden and able to walk only a few meters, with breathing difficulty, muscle weakness,…

  • Treatment with KDM Miraculous So Far, Need Help with Dysbiosis Though

    Substantial ME/CFS Very severeIll 30 years forums.phoenixrising.me Jan 2019

    After roughly 30 years of suspected chronic Lyme/ME-CFS that left him "near totally bed-ridden and almost not being able to speak," he began a multi-part KDM protocol in 2018 including subcutaneous Gammanorm, alternating Normix/Mutaflor, B12 injections, an…

  • Instant relief with inosine plus caffeine

    Partial ME/CFS Moderate forums.phoenixrising.me Dec 2018

    pattismith reports that inosine combined with caffeine relieves her muscle weakness/pain and brain fog within about an hour of taking it, and as of a follow-up three weeks later says it is "still working for me." This reads as reliable short-acting symptom…

  • One week remission with an SSRI?

    Relapsed ME/CFS Effect faded forums.phoenixrising.me Dec 2018

    Bupropion produced roughly two weeks of remission from brain fog specifically, which then "mysteriously disappeared" and never returned, even after a later break from the drug and restarting it -- a symptom-specific improvement that faded and could not be…

  • Very Noticeable Improvements in Brain Fog Using Dr Greg Russell-Jones's Transdermal B12 Oils

    Partial ME/CFS forums.phoenixrising.me Nov 2018

    Index entry credits Johnmac, alongside Hip, with Dr Greg Russell-Jones's transdermal B12 oil for noticeable brain-fog improvement. The specific post from Johnmac was not captured in what was fetched (only Hip's own account was), so no further detail on his…

  • Very noticeable improvements in brain fog using transdermal B12 oils

    Partial ME/CFS Moderate forums.phoenixrising.me Nov 2018

    Hip applied a transdermal B12 oil (2.5mg per dose) every 2-3 days from November 2018, getting increased cognitive clarity within 2-3 hours that lasted about 3 days per dose, managing side effects with potassium and niacinamide. The benefit was purely…

  • How I put ME/CFS into remission....& even better

    Full recovery ME/CFS Very severeIll 3.5 years healthrising.org Oct 2018

    Fecal microbiota transplant using encapsulated stool from his daughter, delivered partway into the small intestine after clearing his own gut flora with antibiotics, combined with a strict prebiotic diet for weeks to months, was credited for his recovery. He…

  • B12 injections are the bee's knees

    Partial ME/CFS ModerateIll 15 years forums.phoenixrising.me Oct 2018

    shoponl, 15 years into exhaustion, PEM, brain fog and mild chemical sensitivity with normal B12 blood levels, had years of minimal benefit from sublingual B12 before switching to injections. After about six injections over two months she felt "a thousand…

  • My Brain Retraining Story

    No benefit ME/CFS SevereIll 6 yearsEffect faded anaharriswrites.com Sep 2018

    She practiced the Gupta Programme's limbic retraining for several months, including daily 20-minute breathing meditation, NLP-style hand motions, and "soften and flow" visualization. She had been severely ill with ME/CFS for about six years, housebound and…

  • Beginning of improvement?

    Partial ME/CFS Ill 6 years forums.phoenixrising.me Jun 2018

    Six weeks into a self-directed antiviral/immune-booster stack (famciclovir, amantadine, cimetidine, astragalus, inosine, vitamin C) for CFS that began after an unresolved flu six years earlier, reports "much more energy, no brain fog, no fatigue, no chest…

  • Choose the order: Oximatrine, Olmesartan, Famciclovir, Inosine Pranobex and Cycloferon.

    Partial ME/CFS forums.phoenixrising.me Jun 2018

    Olmesartan, an angiotensin receptor blocker taken as part of a Marshall Protocol approach; he does not give his own exact dose, though he notes a severe ME/CFS patient he knew benefited on as little as 20mg daily within a few months. He reports the drug…

  • L-carnitine is working for me.

    Partial ME/CFS forums.phoenixrising.me Mar 2018

    L-carnitine 2g/day brought less tiredness and less brain fog within three days, but the gain plateaued: "I improved and then reached a plateau... it's not enough to increase my activities" -- a modest, capped improvement in day-to-day tolerance rather than…

  • Treating patients suffering from ME/CFS with Sodium Dichloroacetate (pilot trial)

    Partial ME/CFS Effect faded forums.phoenixrising.me Mar 2018

    Sodium dichloroacetate (DCA), 333mg taken twice daily for a combined 666mg per day, was used on an ongoing basis. Illness duration and severity before starting are not stated in the post. They reported that each dose reduced their brain fog and gave them…

  • From brain fog to clarity in 30 minutes

    Partial ME/CFS Mild forums.phoenixrising.me Mar 2018

    A five-supplement mitochondrial stack -- ubiquinol, nicotinamide riboside, fursultiamine, dichloroacetate and PQQ -- reportedly clears his brain fog within about 30 minutes of dosing and gets him to "close to normal" function from a mild/SEID baseline. He is…

  • Moderate success with hookworms/helminthic therapy after 2.5 yrs

    Partial ME/CFS SevereIll 15 yearsEffect faded forums.phoenixrising.me Dec 2017

    After 15 years of severe ME/CFS/FM (about 85% housebound, severe PEM, chronic muscle pain, borderline POTS, brain fog), tried hookworm therapy, titrating from 5 up to 25 worms before settling on a maintenance dose of 10. Over 2.5 years reports reduced…

  • After 26 Years of Hell, the Pridgen Protocol Does it for X

    Near-full ME/CFS Very severeIll 26 years healthrising.org · sells Dec 2017

    The patient, identified only as "X", used the Pridgen Protocol under Dr. Pridgen — Famvir (an antiviral) combined with Celebrex (an anti-inflammatory) — though the page gives no specific doses or treatment duration. He had been ill for 26 years, dropping…

  • Successful Pilot Study Treating PDH Deficiency in ME/CFS (B1 / CoQ10 / ALA / Algae + HOA)

    Partial ME/CFS forums.phoenixrising.me Nov 2017

    Thiamine injections (with oral benfotiamine also tried), as part of a broader personal supplement stack, improved heavy limbs, muscle twitching, energy, post-meal exhaustion and brain fog. By her own account, "I'm not cured, I just can function better" -- a…

  • Anyone else here have MCS too?

    Near-full ME/CFS Severe healthrising.org Nov 2017

    Takes Miyarisan, a Clostridium butyricum probiotic, on an ongoing basis for severe MCS (perfumes, cigarette smoke, kerosene, air fresheners) alongside ME/CFS, POTS, IBS, brain fog and PEM. Says it almost completely stopped her MCS reactions; she still avoids…

  • Homeopathy - My Cure after 15 years

    Near-full ME/CFS MildIll 15 years healthrising.org · sells Nov 2017

    Rosco84 developed severe fatigue and brain fog after glandular fever at 17 and struggled for 15 years while still working full-time, trying supplements, antidepressants and acupuncture with little lasting benefit. A homeopath using remedies including…

  • Anyone else have a massive improvement from Tyrosine?

    Substantial ME/CFS forums.phoenixrising.me Sep 2017

    drob31 says tyrosine "cuts through brain fog and fatigue like a knife through butter." He hit a two-week crash he attributes to combining it with caffeine, then resumed at a lower, less frequent dose with better results, suggesting the benefit is real but…

  • Symbioflor-2: Another E.Coli Probiotic

    No benefit ME/CFS cfsremission.com Sep 2017

    Symbioflor-2, an E. coli probiotic, was taken over three weeks with the dose gradually increased to 21 drops a day. Illness duration and severity before starting are not stated, though prior stool testing had shown an absence of bifidobacteria, lactobacillus…

  • M.E., My Mold, and I: A Story of ME/CFS and Toxic Mold

    Partial ME/CFS SevereIll 7 years healthrising.org Sep 2017

    Over nearly seven years of ME/CFS beginning in late summer 2010, she tried pacing with a heart-rate monitor and many supplements, including herbal antivirals, for about a year, then added neurotransmitter support (dopamine, GABA), an ATP Fuel supplement,…

  • This Is Why I Quit Exercise Therapy

    No benefit ME/CFS SevereIll 5 months buzzfeed.com Aug 2017

    Graded exercise therapy, prescribed by an NHS specialist, started with five minutes of walking a day and increased weekly, reaching six minutes in week two and continuing upward. She had been unwell for roughly five months, with flu-like exhaustion, joint…

  • 3 kings to lift you

    Substantial ME/CFS Very severeIll 6 yearsEffect faded forums.phoenixrising.me Aug 2017

    From sleeping 22 hours a day and considering suicide about six years into illness, this poster describes a large, years-long stack - pulsed steroids, noopept-based nootropics, experimental NSI-189, and roughly twenty daily supplements - restoring the ability…

  • Oxymatrine: What to expect with fatigue and how long? (And my on-going journey, info and questions.)

    Substantial ME/CFS SevereIll 8 years forums.phoenixrising.me Jun 2017

    Titrated oxymatrine up to one pill twice daily over 5-6 months, for ME/CFS that had left her housebound on constant bedrest and functioning at "about 35-40%." After an initial worsening (cold sweats, fever, vomiting), reports going "from functioning at about…

  • Serrapeptase gives me more energy and no brain fog, why?

    Partial ME/CFS forums.phoenixrising.me Mar 2017

    One capsule of 40,000 SPU serrapeptase before meals produced, within 4-5 hours and lasting 2-3 days, a jump in energy, sharper focus, no brain fog, reduced depression, better skin and relief from sinusitis and mold/chemical itching, according to this poster;…

  • WHAT DOES THIS POSITIVE EFFECT OF PREDNISONE MEAN?

    Substantial ME/CFS Severe forums.phoenixrising.me Feb 2017

    Two months into a prednisone taper, this poster describes "breathtaking improvements" in PEM, neck/back pain, fatigue, muscle weakness, brain fog, joint pain and dizziness, while noting not everything resolved completely. She continues despite osteoporosis…

  • WHAT DOES THIS POSITIVE EFFECT OF PREDNISONE MEAN?

    Substantial ME/CFS forums.phoenixrising.me Feb 2017

    After recently starting a low, intermittent dose of prednisone, this poster reports fatigue, brain fog, anxiety and depression all lifting, saying he feels "cured already" - hedged only with "so far," since treatment had just begun with no data yet on durability.

  • Spironolactone Usage

    Partial ME/CFS ModerateIll 1 year forums.phoenixrising.me Feb 2017

    After about a year of serious brain fog, pcmenten started spironolactone at 200mg/day, tapering to roughly 50mg, and reported the fog lifting within about 5 days along with better energy, sleep and fewer unexplained fevers, despite developing orthostatic…

  • Hematologic Ozone put me in remission

    Near-full ME/CFS Very severe healthrising.org Jan 2017

    Underwent hematologic ozone therapy (about 200cc of blood drawn, treated with ozone, and reinfused), nine treatments by the time of posting, alongside curcumin 1000mg and acetyl-L-carnitine 100mg twice daily. Had been completely incapacitated and…

  • Calmness & increased functionality from Propranolol

    Partial ME/CFS SevereEffect faded forums.phoenixrising.me Jan 2017

    Propranolol initially brought this poster substantial relief, calling it "life-changing to a certain extent" for cutting the fight-or-flight response, brain fog and sleep-onset problems. Several months in, though, he reports the effect fading, needing higher…

  • Supplement - Increasing N.O. w/o crashing (arginine, lysine, etc.)

    Relapsed ME/CFS Effect faded healthrising.org Jan 2017

    L-arginine, dose and duration unspecified, initially produced a big increase in energy, decreased inflammation and pain, and what the poster called extreme mental focus. This ME/CFS patient, for whom brain fog was one of the most troubling symptoms, then…

  • My recovery after my one and only crash.

    Substantial ME/CFS Very severeIll 10 yearsEffect faded healthrising.org Dec 2016

    Combined a strict elimination diet (no gluten, dairy, processed food or fructose) with Lyrica at 225mg per day, low-dose naltrexone, ketotifen, antihistamines, B12 with methylfolate, rifaximin plus neomycin for SIBO, hyperbaric oxygen, and later tDCS.…

  • Improvement after food poisoning

    Relapsed ME/CFS ModerateEffect faded forums.phoenixrising.me Dec 2016

    After a mild bout of food poisoning with diarrhea, he noticed from the second day that some ME/CFS symptoms had improved — less brain fog and longer sitting tolerance. The improvement lasted several days but the brain fog "returned as soon as my stool…

  • I experience possible cognitive improvement by lamotrigine and clomipramine

    Partial ME/CFS forums.phoenixrising.me Dec 2016

    Nine years into ME/CFS, this poster reports memory, concentration and problem-solving symptoms "improved" on a combination of lamotrigine, clomipramine and clonazepam, and "worsen when I stop taking them for a few days" - a within-subject pattern she takes…

  • Verapamil, a calcium-channel blocker, eases my symptoms

    Substantial ME/CFS Moderate forums.phoenixrising.me Sep 2016

    Verapamil ER, a non-dihydropyridine calcium channel blocker, was started at 120mg and later raised to 180mg extended-release, taken each evening for several years by the time of posting. Illness duration before starting is not stated. He reports night sweats…

  • A Decades Long Struggle with Chronic Fatigue Syndrome Ends

    Full recovery ME/CFS SevereIll 25 years healthrising.org · sells Aug 2016

    Kate, a high school teacher, developed a persistent flu-like illness in 1987 that left her severely disabled for 25 years with fevers, chills, muscle and joint pain and memory problems. Dr Lerner diagnosed an active HHV-6 infection and prescribed high-dose…

  • Renee Can't Exercise But Otherwise Has A Normal Life

    Substantial ME/CFS SevereIll 8 years healthrising.org Aug 2016

    Renee, too weak for moderate exercise and nauseated within months of a December 2002 onset, had her cognitive symptoms resolve within weeks of starting Valtrex, then added Valcyte after 9 months. By 2010 she had reached 8/10 energy and near-normal life,…

  • Long Treatment Regimen Reaps Dividends for Irene

    Substantial ME/CFS SevereIll 13 years healthrising.org · sells Aug 2016

    Irene, a college teacher, developed severe ME/CFS with active EBV and HHV-6 infections after 2001, with extreme fatigue, migraines, joint pain and memory loss. Over more than a decade she combined Valtrex and Valcyte, Babesia treatment, atenolol, complete…

  • The Master Cleanse

    Partial ME/CFS ModerateIll 14 years howirecovered.com Apr 2016

    Fourteen years into CFS and CIRS (also citing heavy metal toxicity, mold and Lyme disease), Eric documented a roughly 25-day Master Cleanse of lemon juice, maple syrup and cayenne, adding psyllium and bentonite shakes and continuing some supplements against…

  • Dramatic improvement in mental symptoms from melatonin dosed in the DAY

    Relapsed ME/CFS Very severeEffect faded forums.phoenixrising.me Mar 2016

    douglasmich reports daytime melatonin cut his usually "crippling" brain fog by about 80%, eliminated suicidal thoughts for that day, and briefly restored joint stability and enjoyment of music. He is explicit that the benefit is only a single day long,…

  • Dramatic improvement in mental symptoms from melatonin dosed in the DAY

    Relapsed ME/CFS ModerateEffect faded forums.phoenixrising.me Mar 2016

    JES reports feeling "even better than usual after sleep deprivation" on a small morning dose of melatonin, but says anxiety and brain fog return by the following afternoon, matching douglasmich's pattern of a short-lived rather than lasting benefit.

  • Vagus Nerve Stimulation Turns Jean's Life Around

    Near-full ME/CFS Very severe healthrising.org · sells Mar 2016

    Jean developed fibromyalgia during a pregnancy and gradually became mostly bedbound with severe widespread pain, allodynia, brain fog and IBS. Under Dr Benjamin Natelson's care she had a vagus nerve stimulator surgically implanted. She still has some pain…

  • Success treating multiple infections with Chlorine Dioxide

    Substantial ME/CFS Very severeIll 15 years healthrising.org Feb 2016

    Followed Kerri Rivera's MMS (chlorine dioxide) protocol for 4.5 months, combined with a raw vegan diet and daily castor oil packs, for CFS/ME diagnosed 15 years earlier and later found to involve Lyme, bartonella, babesia, EBV, mycoplasma and mold. Had been…

  • Preventing Sleep Apnea Therapy was Miracle Cure for Me

    Full recovery ME/CFS ModerateIll 15 years healthrising.org Feb 2016

    After roughly 15 years of brain fog, mold sensitivity, daytime sleepiness and exhaustion she attributed to self-diagnosed ME, Mary Jane Reyes began using Provent, an adhesive nasal-valve device for sleep apnea. Within a few nights of use she reports "all of…

  • Tried Stimulants, Seen notable improvement

    Substantial ME/CFS forums.phoenixrising.me Oct 2015

    Long-acting 20mg Ritalin is reported as ongoing help with concentration and fatigue, to the point this poster says he "can actually study with it." He's careful to call it "not a cure" even while saying it's "helping me immensely."

  • Tried Stimulants, Seen notable improvement

    Partial ME/CFS forums.phoenixrising.me Oct 2015

    Trying Ritalin and then Adderall XR 10mg, this poster reports cognition and concentration improved enough that "if I try I can do work," while fatigue itself stayed largely unchanged; he switched away from Adderall due to heart palpitations. Hedges that…

  • Bravo GcMAF Probiotic Yogurt

    Partial ME/CFS forums.phoenixrising.me Oct 2015

    Took Bravo yoghurt and GcMAF cream twice daily (morning before food, night after dinner) for his ME/CFS. Reported increased energy, reduced brain fog, deeper/more vivid sleep and more regular digestion, but says plainly "it is by no means a cure" - benefits…

  • My CFS Recovery

    Substantial ME/CFS SevereIll 25 yearsEffect faded healthrising.org · sells Sep 2015

    Jocelyn became severely ill with CFS more than 25 years before writing, at one point nearly bedridden for over a year with fatigue, muscle and joint aches, brain fog and near-fainting. Intravenous vitamin therapy and dietary change first let her work and…

  • Hitting Rock Bottom Leads To Turnaround for Dan

    Full recovery ME/CFS SevereIll 6.5 years healthrising.org · sells Aug 2015

    Dan developed ME/CFS after a chickenpox vaccination during an intensely stressful period, and over six and a half mostly homebound years suffered extreme fatigue, bouts of fever, cardiac issues and brain fog. He attributes his recovery to addressing…

  • Xlear Sinus Spray Is Working Miracles... Q. re Xylitol & GSE

    Partial ME/CFS forums.phoenixrising.me Jun 2015

    Started using Xlear xylitol/grapefruit-seed-extract nasal spray on a Saturday night and reported it "working miracles" for her brain fog, with her head feeling good "today" in a same-week follow-up. She expressed uncertainty about whether the relief would…

  • Still doing great since Rituxan !

    Partial ME/CFS Very severe forums.phoenixrising.me Jun 2015

    Self-described severe/very-severe ME, she followed the Norwegian Haukeland Rituximab schedule (1g infusions across day 0 through week 60). One month in she reported a mixed picture — some autoimmune-type symptoms improving, but cognitive impairment and…

  • From the Bedside to the Outdoors: Green Girl Goes Green Again

    Near-full ME/CFS SevereIll 5 yearsEffect faded healthrising.org · sells Jun 2015

    An outdoorsy environmental scientist who blogs as Green Girl contracted Ross River virus in 2009 and relapsed severely in 2010, becoming mostly bedbound with fatigue and brain fog so severe she could only read small amounts. She used pacing, graded exercise,…

  • Spiritual Experience Changes Matt's Life

    Full recovery ME/CFS SevereIll 5 years healthrising.org May 2015

    Matt developed chronic fatigue syndrome after a viral illness in the mid-1990s and by 1998 was severely disabled with fatigue, dizziness, breathing difficulty, muscle pain, night sweats and brain fog that forced him to stop working. He states supplements and…

  • LED, Red, Intranasal Light Therapy

    Substantial ME/CFS Very severeIll 2.75 years forums.phoenixrising.me Apr 2015

    ScottTriGuy, housebound with deep fatigue, nausea, brain fog and strong heartbeat about 2.75 years after onset, started an intensive 5-day course of red/infrared laser therapy on the back of his neck, then continued daily. Symptoms eased markedly by day…

  • Stinging Her Way Back to Health

    Full recovery ME/CFS Effect faded healthrising.org Apr 2015

    Nancy developed chronic fatigue syndrome in 1994 and experienced a relapse along the way. She credits bee venom therapy, which she says is not a cure but helped her get her life back, together with vitamin B12, hypnotherapy, guided meditation and…

  • I had Rituxan and I feel amazing

    Substantial ME/CFS Very severeIll 33 yearsEffect faded forums.phoenixrising.me Mar 2015

    Ill 33 years with feeding-tube dependence, orthostatic blood pressure of 58/42, bedbound autonomic dysfunction and photophobia, she received 4 weekly Rituximab infusions (375mg/m2) with methotrexate and steroid premedication at Stanford, finishing mid-March…

  • Jess Goes Raw - and Beats ME/CFS

    Full recovery ME/CFS Moderate healthrising.org · sells Mar 2015

    Jess became ill with fatigue and brain fog at university, and after noticing raw foods made her feel better she gradually shifted to a largely raw diet while cutting processed foods and swapping chemical household products for natural ones. Visualisation…

  • Methylation: From feeling FANTASTIC back to Square One

    Relapsed ME/CFS SevereEffect faded forums.phoenixrising.me Feb 2015

    After years of depression, brain fog and morning "zombie" fatigue since childhood, starting a methylated Thorne B Complex brought what he called "life changing results" within 3-4 days — lifted depression, cleared brain fog, more energy, better memory and…

  • My Chronic Fatigue Recovery Story

    Full recovery ME/CFS ModerateIll 1 yearEffect faded forums.phoenixrising.me Nov 2014

    Functioning at an estimated 20-30% with brain fog and activity-triggered crashes, this poster credits about a month of intensive journaling and emotional-processing work (targeting suppressed anger), guided by a self-help book, for a full recovery. Back…

  • Rambler's Mold Avoidance Experiments

    Substantial ME/CFS SevereIll 4 years forums.phoenixrising.me Nov 2014

    After needing stimulants just to leave his moldy San Francisco house for four years, strict mold avoidance for about two weeks brought sleeping through the night, less brain fog, clearer vision, more morning energy and almost no tingling in his hands and…

  • what has worked for you

    Partial ME/CFS Very severeIll 20 years forums.phoenixrising.me Oct 2014

    After 20 years of illness severe enough that she says she "would be" completely housebound and probably bedbound without treatment, unnamed antivirals and immune modulators keep her functioning at home, attending only medical appointments outside it. She…

  • High-Dose Selenium Significantly Improves My Fatigue and Brain Fog

    Partial ME/CFS Moderate forums.phoenixrising.me Jan 2014

    Hip is a long-standing, moderately ill ME/CFS forum member and prolific self-experimenter who has never found one cure but has documented dozens of individual n=1 supplement/technique trials, each targeting a specific symptom. Notably, high-dose selenium…

  • B12 does seem to be helping me :)

    Partial ME/CFS Moderate forums.phoenixrising.me Dec 2013

    Struggling with significant brain fog, depression and word-finding problems, he started Jarrow methylcobalamin lozenges at 1000mcg/day, raising the dose to 2000mcg and then 5000mcg over about 3 months. By 5 months he reported less brain fog, improved writing…

  • Famvir- my story

    Substantial ME/CFS Severe forums.phoenixrising.me Oct 2013

    Started Famvir at 500mg three times daily, gradually titrating up, and by three to four months noticed cognitive and physical improvements herself, with her family remarking on the change and her daughter saying she was "getting her mom back." Brain fog,…

  • Finally feeling like my normal (CFS normal) self again after SMP attempt

    Substantial ME/CFS ModerateIll 10 years forums.phoenixrising.me Sep 2013

    After about 10 years of suboptimal methylation function, he actually stopped the Simplified Methylation Protocol and switched to low-dose niacin, B1/B2, P5P and minerals, later adding NA-Tyrosine. Within 3 months he was "finally feeling 'my normal' again,"…

  • An Herbal Approach to Chronic Fatigue Syndrome That Worked

    Substantial ME/CFS Very severeIll 30 years healthrising.org Aug 2013

    St John's Wort was one component of a multi-herb tea, taken as part of 25ml doses five times daily alongside chamomile, ginkgo, lemon balm, mistletoe, nettle, rooibos, skullcap, valerian and vervain, plus a separate ground-herb mix with ashwagandha and…

  • Improving with ABX, finally?

    Partial ME/CFS SevereIll 9 years forums.phoenixrising.me Jun 2013

    After 9 years of illness with significant fatigue and brain fog, an antibiotic protocol (drugs/doses not specified in this post) produced about 4 months of a severe Herxheimer-type reaction before it passed. In the following roughly 10 days he gained 5kg up…

  • CBS success!

    Substantial ME/CFS ModerateIll 7 years forums.phoenixrising.me May 2013

    Seven years into ME/CFS with post-exertional fatigue and cognitive dysfunction, she used a CBS-mutation-targeted protocol of activated charcoal, magnesium, molybdenum, manganese and sulfur-food restriction. Cognition "started to clear" within hours of her…

  • Dermorphin Experience - Very Impressive Results

    Relapsed ME/CFS Effect faded forums.phoenixrising.me Apr 2013

    Took a single 100mcg intranasal dose of dermorphin (extracted from the same frog secretions used in Kambo) for ME/CFS with co-occurring generalized anxiety. Over the following days reports reduced brain fog and sensory hypersensitivity, better energy,…

  • Improved (5yr)-sometimes dont notice it -now new baseline

    Substantial ME/CFS SevereIll 5 years forums.phoenixrising.me Nov 2012

    After 5 years of severe illness with autonomic dysfunction, cognitive problems, sleep apnea and spinal compressions needing three surgeries, he combined a broad stack - Adderall, Celexa, omeprazole, dopamine- and adrenal-support supplements, B12, an…

  • My Valcyte pilgrimage

    Substantial ME/CFS SevereIll 2 years forums.phoenixrising.me Aug 2012

    About two years into illness with a persistent CMV infection (titer 107 against a normal range of 0-18), severe brain fog, extreme fatigue needing 12+ hours of sleep, and tachycardia and breathing trouble so bad she "felt like I was dying," started Valcyte…

  • Update from Michael Snyderman, MD

    Relapsed ME/CFS SevereIll 40 yearsEffect faded x-rx.net Dec 2011

    Dr. Snyderman, who developed CFS about a decade after an oral polio vaccine and later CLL, started AZT plus raltegravir 571 days after his CLL diagnosis and improved for about 9.4 months, with falling cytokine markers and better fatigue, concentration and…

  • Successfull GcMAF Therapy

    No benefit ME/CFS forums.phoenixrising.me Sep 2011

    Took 38 full doses of GcMAF and reports "nothing happened," possibly with somewhat worsened brain fog, describing himself as "back to square one." No benefit is reported despite a substantial course of treatment.

  • Gut healing - what seems to be helping me

    Partial ME/CFS ModerateIll 8 years forums.phoenixrising.me Jun 2011

    After about 8 years of illness, 9 months of drinking raw-milk kefir resolved her multiple chemical sensitivity ("no longer feel like I'm choking" around perfume), completely cleared longstanding hand eczema, let her cut thyroid medication from 225mcg to…

  • EECP Treatment is Very Helpful/My Daughter Helped Alot

    Near-full ME/CFS SevereIll 5 years forums.phoenixrising.me Oct 2010

    As reported by her father: after 1.5 years on LDN, she started EECP sessions in late May (about 5 months of treatment by this post) along with immune-building supplements from Dr. Enlander. Her father describes a "night and day" change -- energy up, blood…

  • EECP Treatment is Very Helpful/My Daughter Helped Alot

    Partial ME/CFS Moderate forums.phoenixrising.me Oct 2010

    Had weekly EECP sessions for 5 months alongside a methylation protocol, a Candida protocol and AHCC Gold. After about a month she noticed improved sleep and daytime energy, roughly 20-25% more daily activity, less brain fog and easier waking. She was…

  • Learning to Fly Again

    Substantial ME/CFS Very severe forums.phoenixrising.me 2010

    Kelvin Lord, "barely able to walk" at the start, took twice-weekly Ampligen infusions for a full year with perfect compliance, enduring about six months of flu-like side effects (tremors, diarrhea, vision loss, depression). He reached roughly 70%…

  • IVIG and Xiflaxan: A Dr. Peterson Patient Improves

    No benefit ME/CFS Severe forums.phoenixrising.me Dec 2009

    With severely swollen intestines, inability to eat or sleep without drugs and severe brain fog, he tried Xifaxan (which caused nausea and dizziness), charcoal tablets, pine cone extract and cat's claw, but reports no improvement and ongoing severe symptoms.

  • Famvir for 5 days now instant relief!

    Substantial ME/CFS ModerateIll 6 months forums.phoenixrising.me Dec 2009

    Six months into CFS and running at roughly 50-60% of pre-illness baseline, started Famvir 500mg daily (250mg morning, 250mg evening) and described a "huge improvement after day 1," with less fatigue, less brain fog and less "heavy lead limb" feeling. By day…

  • Modafinil for Chronic Fatigue Syndrome Reviews

    Relapsed ME/CFS Effect faded drugs.com Jun 2009

    Modafinil, titrated from 200mg up to 300mg and then 400mg daily over time, initially produced significant improvement in fatigue and brain fog, rated 8 out of 10 overall. The reviewer reported that the drug's efficacy diminished over three years of use,…

  • Dr. Patricia Williams's Client Story

    Substantial ME/CFS SevereIll 15 years theoptimumhealthclinic.com · sells Mar 2009

    Credits brain retraining, CBT or psychological work and diet. Patricia was ill 15y with severe ME/CFS and reports a substantial improvement. Severe cognitive impairment; no longer housebound.

  • St Johns wort?

    Partial ME/CFS Moderate forums.phoenixrising.me

    St John's Wort, taken at 2-3 times the standard recommended dose for 3 consecutive days each month, gave this ME/CFS patient a pleasant feeling of relaxation and cleared brain fog. Illness duration before starting is not stated. He deliberately cycles it…

  • Almost Back to Pre-CFS - Oxaloacetate CFS Review

    Near-full ME/CFS Moderate oxaloacetatecfs.com · sells

    Oxaloacetate supplement, dose and duration of use unstated, credited by a patient posting as printcess41 (originally on Reddit). Before starting she describes severe brain fog: trouble expressing thoughts, remembering basic words, concentrating, and even…

  • How Oxaloacetate Transformed Amanda's ME/CFS Healing Journey

    Substantial ME/CFS ModerateIll 4 years oxaloacetatecfs.com · sells

    Oxaloacetate supplement, self-titrated from 500mg up to 1,000mg daily and continued for nearly a year at the time of writing. Amanda had been ill for about 4 years (symptoms from 2017, diagnosed 2021), with fatigue and cognitive impairment severe enough to…

  • Mending the Mitochondria: Lipid Replacement Therapy for Chronic Fatigue Syndrome

    Substantial ME/CFS drcourtneycraig.com

    NT Factor (a single dose), followed by ATP Fuel at a reduced dose because it felt too stimulating, plus regular glycerophosphocholine and phosphatidylserine (branded Brain Vitale) for ongoing mental clarity. The author, a clinician diagnosed with chronic…

  • Opioids and Brain Fog

    Partial ME/CFS forums.phoenixrising.me

    Codeine, 30mg combined with paracetamol, taken once daily, is described by a forum poster as freeing them from distressing brain symptoms and improving cognition on days they take it. Illness duration and severity beforehand are not stated. The benefit is…

  • Opioids and Brain Fog

    Partial ME/CFS forums.phoenixrising.me

    Co-codamol, codeine combined with paracetamol, taken daily for about three years, is described by a forum poster as their means of managing head discomfort and brain fog. Illness duration before starting and severity are not stated. They report it quickly…

  • making a PRObiotic chart -- Bifido spp only!!

    No benefit ME/CFS forums.phoenixrising.me

    Bifidobacterium infantis 35624: taken as the Align probiotic brand, starting at one capsule daily for two weeks and then increasing to two capsules daily. She has ME/CFS with symptoms including joint pain, tinnitus and brain fog. The first two weeks produced…

  • List of ME/CFS Recovery and Improvement Stories

    Full recovery ME/CFS forums.phoenixrising.me

    Linda is listed reaching full recovery on low-dose oral interferon alpha (250IU 4x/day), with brain fog improving within weeks and pain clearing within about 2 months.

  • List of ME/CFS Recovery and Improvement Stories

    Substantial ME/CFS forums.phoenixrising.me

    pcmenten is listed reporting brain fog clearing on spironolactone 25mg twice daily, with the case noting benefits persisted even after the drug was later discontinued.

  • High-Dose Selenium Significantly Improves My Fatigue and Brain Fog

    Partial ME/CFS forums.phoenixrising.me

    Index entry credits jmd82 with 400mcg daily selenomethionine, replicating Hip's own high-dose selenium result, for a significant reduction in fatigue and brain fog. No further detail on duration of illness, severity, or durability was available beyond the…

  • Anna de Vries' Story

    Full recovery Long COVID SevereIll 4 years the-recovery-hub.org

    She recovered from post-viral ME/CFS using Jan Rothney's Reset to Thrive programme, introduced via Rothney's book Breaking Free, combined with trauma therapy, somatic work including Trauma Releasing Exercises (TRE) and haptotherapy, and brain-retraining and…

  • Long COVID Recovery - 3 Personal Stories of Healing (Cameron)

    Substantial Long COVID SevereIll 10 months amaregenmed.com · sells

    Cameron received a series of EBOO/F (extracorporeal blood oxygenation, ozonation and filtration) sessions along with hyperbaric oxygen therapy, and was on his third treatment when interviewed. He had been sick with extreme fatigue, brain fog and facial…

  • Alice's Story

    Full recovery ME/CFS SevereIll 4 years the-recovery-hub.org · sells

    She recovered from ME/CFS using The MindBody Reconnect, a mind-body nervous-system-regulation method, working with practitioner Clare Caldwell, alongside acupuncture and self-directed calming practices such as time in nature. Alice Bowley was ill for about 4…

  • Paul Garner's Story

    Full recovery Long COVID SevereIll 10 monthsEffect faded the-recovery-hub.org

    He credits a mind-body approach, working with an unnamed practitioner who had himself recovered from ME/CFS, using relaxation techniques and reinterpreting his symptoms as a stress response, alongside a gradual return to exercise from gentle activity up to…