Long COVID, unable to work, much better with rest and energy management
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 18 months
- Last post
- Jun 2026
In their words
- Condition: Long COVID
Yes, I got from Covid in 2021.
In context ↗ - At worst: Severe
I had to quit working, stop all social activities, and just sleep.
In context ↗ - Now: Much better
It took me a year and a half to go from severe to the mild/moderate that I can maintain now.
In context ↗ - Began after: COVID
Yes, I got from Covid in 2021.
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
Coast 60257 fell ill with Covid in 2021 and had to quit work and social activities, sleeping through the worst of it. Over about a year and a half they went from severe to a mild/moderate level they could maintain, through rest and managing energy. By 2026 they had kept most of their previous fitness while still pacing carefully. Iron supplements raised ferritin from 22 to 40 but did nothing for their fatigue. They also reported horrible insomnia.
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What they tried
What they credit
Also tried
Their words about each treatment
- quit working, stop all social activities, and just sleep · Helped a lot
I had to quit working, stop all social activities, and just sleep. ... It took me a year and a half to go from severe to the mild/moderate that I can maintain now.
- managing energy levels · Helped
Now I'm really careful about managing energy levels and try to lay down whenever I start feeling tired.
In context ↗ - CoQ10 · Worse
It gave me horrible insomnia.
In context ↗ - iron supplements · No change
I've been on iron supplements for 5 months now. My ferrtin was 22 and was up to 40 last month. I haven't noticed any positive changes with my fatigue, unfortunately.
In context ↗
Approaches: Pacing · Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021 | fell ill with Covid; quit work and social activities, sleptI had to quit working, stop all social activities, and just sleep.In context ↗ | Severe | |
| about a year and a half later | improved from severe to mild/moderate by resting and pacingIt took me a year and a half to go from severe to the mild/moderate that I can maintain now.In context ↗ | Mild | Radical rest |
| 2026-06 | maintaining mild/moderate function and most of their previous fitnessYes. I've very carefully maintained most of my fitness from before I got sick.In context ↗ | Mild |
Adverse events
- CoQ10 / ubiquinol“It gave me horrible insomnia.” In context ↗ Insomnia from treatment
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