Years of constant fatigue and pain with ME/CFS; a POTS answer makes it easier to bear
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Mar 2026
In their words
- Condition: ME/CFS
CONSTANT fatigue and pain
In context ↗ - At worst: Mild
YEARS of hurting myself every time I try to do tricep kickbacks or flies, never being able to develop any strength in my upper half
In context ↗ - Now: No benefit
CONSTANT fatigue and pain ... But I have answers now
In context ↗
Summary
Horizon 61124 describes years of constant fatigue and pain, with cervical spine degeneration they date to their 20s, and an inability to build strength in their upper half. They now understand that their need for copious electrolytes points to POTS, and having answers makes things a little easier to bear. Adipex was wonderful for about two weeks, after which they needed about two months to recover from what they had done while on it.
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What they tried
Also tried
Their words about each treatment
- copious electrolytes · Helped
I accidentally found out years ago that I need copious electrolytes
In context ↗ - Adipex · Helped a lot
Adipex was WONDERFUL for about two weeks, and then I needed approximately two months to recover from what I'd done while I was on it
In context ↗ - tricep kickbacks or flies · Worse
YEARS of hurting myself every time I try to do tricep kickbacks or flies
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| in my 20s | constant fatigue and pain; cervical spine degenerationCONSTANT fatigue and pain ... starting in my 20s lolIn context ↗ | Mild | |
| 2025-03-03 | felt wonderful for about two weeks on AdipexAdipex was WONDERFUL for about two weeksIn context ↗ | Near normal | Phentermine (Adipex) |
| 2025-03-03 | crashed, needed about two months to recoverI needed approximately two months to recover from what I'd done while I was on itIn context ↗ | Not stated | |
| 2026-03-29 | realised electrolyte need pointed to POTS; relievedI'm SO relieved to now understand what's happeningIn context ↗ | Mild |
Adverse events
- Phentermine (Adipex)“Adipex was WONDERFUL for about two weeks, and then I needed approximately two months to recover from what I'd done while I was on it” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
not a single one of them thought of pots
In context ↗ - Post-exertional malaise
hurting myself every time I try to do tricep kickbacks or flies
In context ↗ - Pain & fibromyalgia
CONSTANT fatigue and pain
In context ↗ - Muscle weakness
never being able to develop any strength in my upper half
In context ↗