Long COVID
Outcome unclear
Long COVID symptoms with energy never returning; rapamycin no effect
- Condition
- Long COVID
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Jul 2025
In their words
- Condition: Long COVID
My PCP thinks I have long Covid
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A person whose PCP thinks they have long Covid and whose infectious disease specialist affirmed their symptoms are consistent with it reported new food sensitivities to gluten, shellfish and corn, itchy histamine-type skin issues, and energy that never returned to prior levels. They took rapamycin, titrating to 5 mg once weekly for over a year. It gave an incredibly positive response in their hand arthritis but no noticeable effect on their long Covid symptoms.
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What they tried
Also tried
Their words about each treatment
- rapamycin · No change
I titrated up to 5 mg rapamycin once per week for over a year now. While I have had an incredibly positive response in my hand arthritis ... no noticeable effect on Long Covid symptoms.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| onset | Long Covid with food sensitivities, histamine-type skin issues and reduced energyMy PCP thinks I have long CovidIn context ↗ |
| 2025-07-20 | Still has long Covid symptoms; rapamycin had no noticeable effect on themno noticeable effect on Long Covid symptoms.In context ↗ |
Symptoms mentioned
Their words about their symptoms
- Mast cell (MCAS) & allergies
new digestive sensitivities (gluten, shellfish and corn) and skin issues ( itchy histamine type)
In context ↗