Mild ME/CFS worse with activity, somewhat better after cutting all grains
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Mar 2026
In their words
- Condition: ME/CFS
I thought it was totally normal for physical activity to WORSEN cfs. It certainly does for me.
In context ↗ - Now: Somewhat better
I found that cutting all grain made significant improvements to my energy levels.
In context ↗
Read from 7 of their posts and comments; links to the 5 this page draws on
Summary
A Reddit user with ME/CFS who says they were mild for a long time and that physical activity makes their symptoms much worse. Cutting all grain brought significant improvements in energy and symptoms within a few weeks of consistency; eating mostly vegetables, lean protein and cheese, they lost 100 lbs in under a year without exercise. Getting a puppy made things worse. Their current level is not described.
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What they tried
What they credit
Also tried
Their words about each treatment
- cutting all grain · Helped
I found that cutting all grain made significant improvements to my energy levels.
In context ↗ - sleeping without a pillow, with two pillows under the knees · Helped
no pillow has remarkably helped my back pain
In context ↗
Approaches: Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | mild ME/CFS for a long timeI was mild for a long time.In context ↗ | Mild | |
| 2025-03-09 | cutting all grain improved energy levelsI found that cutting all grain made significant improvements to my energy levels.In context ↗ | Mild | Elimination diets (other) |
| 2025-09-09 | got a puppy and became more active; things got worseThen we got a puppy and I told myself it would be good for me. Sigh. It hasn't been.In context ↗ | Not stated | |
| 2026-01-29 | cutting grains again made symptoms exponentially betterI found that when I cut grains, my symptoms are exponentially better after a few weeks of consistency.In context ↗ | Not stated | Elimination diets (other) |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I thought it was totally normal for physical activity to WORSEN cfs. It certainly does for me.
In context ↗ - Pain & fibromyalgia
no pillow has remarkably helped my back pain
In context ↗
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