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Long COVID Mild → somewhat betterIll 20 months before improving or writing

Long COVID with POTS, fatigue and exercise intolerance, now somewhat better

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
20 months
Last post
May 2025
In their words
  • Condition: Long COVIDI’m almost at my 2 year mark and still not back to my normal self. In context ↗
  • At worst: MildBut if I climb stairs or runs a short distance my heart rate shoots up like crazy. In context ↗
  • Now: Somewhat betterI have improved ALOT though. Doing much better than I was around this time last year. In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on

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Summary

A person with long COVID for about two years described chronic nasal inflammation, POTS, back pain, fatigue and exercise intolerance. By March 2025 they said they had improved a lot, though POTS and exercise intolerance remained and they were still not back to normal. They took nattokinase, 4000 FU a day, and NAC, unsure how much either helped.

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What they tried

Their words about each treatment
  • nattokinase · Not saidStarted taking nattokinase and NAC but not sure how much it’s helping lol In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered20 mo22 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 20 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2023Long COVID symptoms beganit’s been like 20 months for me and it hasn’t gone away In context ↗Not stated
2024much worse than the following yearDoing much better than I was around this time last year. In context ↗Not stated
2025-03-17improved a lot, learned to live with remaining symptomsI have improved ALOT though. Doing much better than I was around this time last year. In context ↗Mild
2025-05-18still rough, hoping for better treatmentsYea it’s rough for sure but I think we will learn how to manage it better and better until hopefully better treatments arrive one day. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiaThe POTS and exercise intolerance are the worst though In context ↗
  • Heart symptoms & palpitationsif I climb stairs or runs a short distance my heart rate shoots up like crazy In context ↗

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