Long COVID with POTS, fatigue and exercise intolerance, now somewhat better
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 20 months
- Last post
- May 2025
In their words
- Condition: Long COVID
I’m almost at my 2 year mark and still not back to my normal self.
In context ↗ - At worst: Mild
But if I climb stairs or runs a short distance my heart rate shoots up like crazy.
In context ↗ - Now: Somewhat better
I have improved ALOT though. Doing much better than I was around this time last year.
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
A person with long COVID for about two years described chronic nasal inflammation, POTS, back pain, fatigue and exercise intolerance. By March 2025 they said they had improved a lot, though POTS and exercise intolerance remained and they were still not back to normal. They took nattokinase, 4000 FU a day, and NAC, unsure how much either helped.
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What they tried
Also tried
Their words about each treatment
- nattokinase · Not said
Started taking nattokinase and NAC but not sure how much it’s helping lol
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 20 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2023 | Long COVID symptoms beganit’s been like 20 months for me and it hasn’t gone awayIn context ↗ | Not stated |
| 2024 | much worse than the following yearDoing much better than I was around this time last year.In context ↗ | Not stated |
| 2025-03-17 | improved a lot, learned to live with remaining symptomsI have improved ALOT though. Doing much better than I was around this time last year.In context ↗ | Mild |
| 2025-05-18 | still rough, hoping for better treatmentsYea it’s rough for sure but I think we will learn how to manage it better and better until hopefully better treatments arrive one day.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
The POTS and exercise intolerance are the worst though
In context ↗ - Heart symptoms & palpitations
if I climb stairs or runs a short distance my heart rate shoots up like crazy
In context ↗