Long COVID
Severe → somewhat betterIll 5 years before improving or writingNeeds ongoing treatment
Long COVID with lung disease and paralysed diaphragm, now slowly doing better
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 5 years
- Last post
- Mar 2025
In their words
- Condition: Long COVID
i’ve already done hyperbaric treatments for internal bleeding while having long covid!
In context ↗ - At worst: Severe
2litees of o2 for the rest of my life
In context ↗ - Now: Somewhat better
I’m slowly doing better am able to do a lil bit of house cleaning at a time
In context ↗ - Began after: COVID
I was also infected in 2020
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
In 2020 they caught COVID-19 without hospitalisation, but became very ill in 2021 with interstitial lung disease and a paralysed diaphragm, needing oxygen and unable to exercise. Hyperbaric oxygen stopped bladder bleeding but did nothing for LC symptoms, though they later reported mild improvement. Neck surgery in August briefly let them walk without oxygen before it reverted. By March 2025 they were slowly doing better, doing a little housework, under severe stress from domestic violence.
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What they tried
Also tried
Their words about each treatment
- hyperbaric treatments · Helped
It completely stopped my bleeding but did nothing for any of my lc symptoms!
In context ↗ - oxygen · Not said
2litees of o2 for the rest of my life
In context ↗ - major neck surgery · Helped
it actually fixed my diaphragm cuz I could walk the halls without o2. But it’s went right bk to the way it was
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2020 | infected with COVID-19, not hospitalisedI was also infected in 2020 and did ok I wasn’t hospitalizedIn context ↗ | Mild | |
| 2021 | became really bad: interstitial lung disease and a paralysed diaphragm, on oxygenstarted getting really bad around 2021 covid gave me an interstitial lung diseaseIn context ↗ | Severe | |
| August 2024 | neck surgery fixed the diaphragm; could walk the halls without oxygenI had a major neck surgery in Aug and it actually fixed my diaphragm cuz I could walk the halls without o2In context ↗ | Mild | |
| after August 2024 | breathing reverted to needing oxygen after the surgeryBut it’s went right bk to the way it wasIn context ↗ | Severe | |
| November 2024 | mild improvement after 35 hyperbaric oxygen treatmentsI did 35 treatments an it took a while but I did see mild improvement.In context ↗ | Moderate | Hyperbaric oxygen (HBOT) |
| 2025-03-15 | slowly doing better, able to do a little house cleaning; under severe stress from domestic violenceBut I’m slowly doing better am able to do a lil bit of house cleaning at a time . I just have to take it slow.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Breathlessness
2litees of o2 for the rest of my life
In context ↗