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Long COVID Mild → no benefitIll for 2 months

Long COVID with panic, severe insomnia and tingling; medications gave no lasting sleep

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill for
2 months
Last post
Apr 2023
In their words
  • Condition: Long COVIDthen other symptoms lead me to long covid. In context ↗
  • At worst: MildI have a 5-year-old son and 6 animals to take care of during the day. ... Some days, like two days ago, I feel pretty normal physically and at least neutral mentally
  • Now: No benefitI am dealing with terrible insomnia for close to 2 months now. In context ↗
  • Began after: COVIDI caught a mild case of covid at the end of January. In context ↗
Read from 21 of their posts and comments; links to the 16 this page draws on

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Summary

Plover 57915 caught mild COVID-19 in late January 2023 and from mid-February had histamine dumps, panic, severe insomnia and tingling, with bloating and reflux by early March. Azithromycin for a sinus infection, then trazodone, Xanax, Ativan, hydroxyzine, Benadryl, melatonin, Belsomra and Ambien gave her no lasting sleep. By April 2023 she was still sleeping only a few hours, anxious and caring for her young son.

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What they tried

Their words about each treatment
  • azithromycin (Z-pack) · WorseI only got through 3/5 Z-pack doses because I was feeling off In context ↗
  • ivermectin (IVM) · Not saidI start IVM today, so maybe that'll help In context ↗
  • black seed oil · Not saidI started IVM yesterday and black seed oil + natto the day before. In context ↗
  • trazodone (traz) · HelpedI was able to get into really light sleep with trazodone and then that stopped working In context ↗
  • Xanax · HelpedXanax is the only thing that has worked In context ↗
  • Ativan · No changeIt didn't really help me sleep either. In context ↗
  • Benadryl · No changeI've tried benadryl and it did nothing. In context ↗
  • melatonin · No change10 mg of melatonin didn't help. In context ↗
  • CBD · HelpedMelatonin doesn't do much but CBD does help some. In context ↗
  • intermittent fasting (IF) · Not saidI've actually been doing some IF just because my appetite isn't great. In context ↗
  • DGL licorice · HelpedDGL licorice before eating is helping, too. In context ↗
  • anti-inflammatory + low-histamine diet · HelpedI've been avoiding sugar, grains, and high-histamine foods and that's helping the reflux at least. In context ↗
  • probiotics · Not saidthen probiotics while I was still eating sugar and grains In context ↗
  • rest · Not saidRegarding rest, I do try. In context ↗
  • Belsomra · No changeI tried 10mg of belsomra last night and it did nothing for me. In context ↗
  • hydroxyzine · WorseHydroxyzine gave me massive internal vibrations In context ↗
  • Zzzquil · WorseZzzquil did the same to a lesser extent In context ↗
  • Ambien · HelpedAmbien puts me in a light sleep and that's it. In context ↗
  • Steroid nasal sprays (unspecified) · Not saidI was using a steroid nasal spray and the insomnia stopped when I DCed them In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset2.3 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
end of January 2023mild COVID-19 infectionI caught a mild case of covid at the end of January. In context ↗Mild
mid-February 2023panic, anxiety and insomnia began two weeks after the infectionWhen the initial panic/anxiety/insomnia started (almost a month ago, 2 weeks after initial mild infection) In context ↗Mild
March 2023reflux eased after cutting sugar, grains and high-histamine foodsI've been avoiding sugar, grains, and high-histamine foods and that's helping the reflux at least. In context ↗MildLow-histamine diet
March 30, 2023insomnia worsened to under an hour of sleep a nightI've literally gotten less than an hour, if that, at night. In context ↗Mild
April 6, 2023still only a few hours of light sleep on Ambienit doesn't feel like deep sleep and it's only a few hours. In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsI am dealing with terrible insomnia for close to 2 months now. In context ↗
  • Anxiety & low moodAll ive felt lately is anxiety or dread. In context ↗
  • Gut problemsThen as I started being able to eat and sleep again, the constipation showed up. In context ↗
  • Neuropathy & tinglingIt's not even pain, just the physical fight or flight and some weird tingling sensations. In context ↗
  • Heart symptoms & palpitationsI'm still dealing with some mild tachy and anxiety In context ↗

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